Publications

General Information

What is von Willebrand Disease? (WFH)

All About von Willebrand Disease
(Canadian Hemophilia Society)

von Willebrand Disease - The Most Common Bleeding Disorder: Your Questions Answered (Canadian Hemophilia Society)

von Willebrand Disorder Fact Sheet
(Haemophilia Foundation Australia)

A Guide for People Living with von Willebrand Disorder (Haemophilia Foundation Australia)

Von Willebrand Disease: Just the FAQs (National Hemophilia Foundation – only in print)

100 Questions and Answers about von Willebrand Disease
(by Dr. Andra H. James – only in print)


Special considerations for women

A Guide for Women Living with von Willebrand’s
(U.K. Haemophilia Society)

Women and Bleeding Disorders (Irish Haemophilia Society)

Bleeding Disorders in Women: The CDC Program
(U.S. Center for Disease Control and Prevention)

Bleeding Disorders in Women: Questions and Answers for the Newly Diagnosed Woman (U.S. Center for Disease Control and Prevention)

Heavy Periods or a Bleeding Disorder (U.S. National Hemophilia Foundation) – only in print

Tips for Living with a Bleeding Disorder (U.S. National Hemophilia Foundation) – only in print

Facts You Should Know About Bleeding Disorders
(U.S. National Hemophilia Foundation) – only in print


Epidemiology

Data on Females with von Willebrand Disease: May 1998 through December 2002 (U.S. Center for Disease Control and Prevention)


Clinical Management

The Basic Science, Diagnosis, and Clinical Management of von Willebrand Disease (WFH)

von Willebrand Disease: An Introduction for the Primary Care Physician (WFH)

Protocols for the Treatment of Hemophilia and von Willebrand Disease (WFH)

The Diagnosis, Evaluation and Management of von Willebrand disease (U.S. National Heart Lung and Blood Institute)

Reproductive Health in Women with Bleeding Disorders (WFH)

The Management of Women with Bleeding Disorders
(Canadian Hemophilia Society)

Guidelines Published by the Society of Obstetricians and Gynaecologists of Canada (SOGC)


Treatment Products

Registry of Clotting Factor Concentrates (WFH)

Desmopressin (DDAVP) in the Treatment of Bleeding Disorders: The First 20 years (WFH)

Fibrinolytic Inhibitors in the Management of Bleeding Disorders (WFH)

Cyklokapron: A Guide for Patients and their Caregivers (Canadian Hemophilia Society)

Desmopressin, A Guide for Patients and Caregivers (Canadian Hemophilia Society)


Other languages

For a list of publications on VWD in Spanish or French, click on the following links:
Spanish
French

What is von Willebrand disease?

What is von Willebrand disease? is also available from the WFH in:
[Español] [Français] [Arabic] [Russian] [Chinese]

This publication has also been translated by WFH national member organizations into the following languages:

Farsi
Polish

 

Last Updated December 2010

 

© Copyright World Federation of Hemophilia 2010