Publications

English

General Information

• What is von Willebrand Disease? (WFH)
• The Basic Science, Diagnosis and Clinical Management of VWD (WFH)
• The Diagnosis, Evaluation and Management of von Willebrand disease
  (U.S. National Heart Lung and Blood Institute)
• All About von Willebrand Disease
  (Canadian Hemophilia Society)
• von Willebrand Disease - The Most Common Bleeding Disorder: Your Questions Answered
  (Canadian Hemophilia Society)
• von Willebrand Disorder Fact Sheet
  (Haemophilia Foundation Australia)
• A Guide for People Living with von Willebrand Disorder (Haemophilia Foundation Australia)
• Meeting von Willebrand Disorder for the First Time: A Guide for Parents (Haemophilia Foundation Australia)
• Understanding von Willebrand Disorder: A Guide for Teachers (Haemophilia Foundation Australia)
• von Willebrand’s: General Information Fact Sheet
  (U.K. Haemophilia Society)
• von Willebrand's - how will it affect my life?
  (Bio Products Laboratories)

Epidemiology

• Data on Females with von Willebrand Disease: May 1998 through December 2002 (U.S. Center for Disease Control and Prevention)

Treatment

• Protocols for the Treatment of Hemophilia and von Willebrand Disease (WFH)
• Desmopressin (DDAVP) in the Treatment of Bleeding Disorders: The First 20 years (WFH)
• Fibrinolytic Inhibitors in the Management of Bleeding Disorders (WFH)
• Amicar and Cyklokapron, A Guide for Patients and Caregivers (Canadian Hemophilia Society)
• Desmopressin, A Guide for Patients and Caregivers (Canadian Hemophilia Society)
• Registry of Clotting Factor Concentrates (WFH)

Special considerations for women

• Pregnancy in Women with Inherited Bleeding Disorders (WFH)
• Gynecological Complications in Women with Bleeding Disorders (WFH)
• The Management of Women with Bleeding Disorders (Canadian Hemophilia Society)
• A Guide for Women Living with von Willebrand’s
  (U.K. Haemophilia Society)
• Bleeding Disorders in Women: The CDC Program
  (U.S. Center for Disease Control and Prevention)
• Bleeding Disorders in Women: Questions and Answers for the Newly Diagnosed Woman
  (U.S. Center for Disease Control and Prevention)
• Heavy Periods or a Bleeding Disorder
  (U.S. National Hemophilia Foundation)
• Tips for Living with a Bleeding Disorder
  (U.S. National Hemophilia Foundation)
• Facts You Should Know About Bleeding Disorders
  (U.S. National Hemophilia Foundation)

Español

Información general

• ¿Qué es la enfermedad de von Willebrand? (WFH)
• Ciencia básica, diagnóstico y tratamiento clínico de la enfermedad von Willebrand (WFH)

Tratamiento

• Protocolos para el tratamiento de la hemofilia y la Enfermedad de von Willebrand (WFH)
• La desmopresina (DDAVP) en el tratamiento de los trastornos de la coagulación: Los Primeros 20 años (WFH)
• Registro de concentrados de factor de coagulación (WFH)

Temas especiales para mujeres

• Embarazo en mujeres con trastornos de la coagulación hereditarios (WFH)
• Complicaciones ginecológicas en las mujeres con trastornos de coagulación (WFH)

Français

Information générale

• Qu’est-ce que la maladie de von Willebrand (WFH)
• Tout sur la maladie de von Willebrand
  (Société canadienne de l’hémophilie)
• La maladie de von Willebrand - le trouble de saignement le plus courant (Société canadienne de l’hémophilie)
• La maladie de Willebrand
  (Association française des hémophilies)
• La maladie de von Willebrand
  (Association suisse des hemophiles)

Traitement

• Amicar and Cyklokapron: Guide pour les patients et les soignants (Société canadienne de l’hémophilie)
• La desmopressine: Guide pour les patients et les soignants (Société canadienne de l’hémophilie)
• Injection des preparations coagulants (Association suisse des hémophiles)

Considérations particulières pour femmes

• Les problèmes hémorrhagiques chez la femme
  (Société canadienne de l’hémophilie)

Italiano

• La Malattia di von Willebrand (Società Svizzera Emofilia)
• Iniezione di preparati coagulanti (Società Svizzera Emofilia)

Deutsch

• Der Morbus von Willebrand
  (Schweizerische Hämophilie-Gesellschaft)
• Injektion von Gerinnungspräparaten
  (Schweizerische Hämophilie-Gesellschaft)

Last Updated November 2008