Albert Farrugia takes new position with the Plasma Protein Therapeutics Association
August 27, 2008 – Albert Farrugia, the WFH's Blood Safety Advisor and long time supporter of the bleeding disorders community will be starting a new job this fall. The Plasma Protein Therapeutics Association (PPTA) has announced that it has named him as their new global access senior director. More
New Executive Committee members elected at WFH General Assembly
Alison Street, MD, of Melbourne Australia has been elected as the World Federation of Hemophilia’s (WFH) new vice-president medical. She was elected at the WFH’s General Assembly on
6 June, at the Hemophilia 2008 World Congress in Istanbul, Turkey. Mark Skinner, Washington, D.C. USA and Rob Christie, Plympton, South Australia, were both unanimously re-elected as President and Vice President Finance respectively for another four years. More
WFH World Congress 2008
June 1-5, 2008
Istanbul, Turkey
Congress materials, including summaries of selected sessions, the book of abstracts, and the state of the art papers, are now available. More
Press releases
Sunday, June 1, 2008
XXVIII International Congress of the WFH opens in Istanbul. More
Monday, June 2, 2008
WFH President Mark Skinner reaffirms commitment to getting “Treatment for All”. More
Congress sponsors' press releases
Bayer HealthCare Announces Recipients of International Hemophilia Nursing Fellowship. More
Baxter Preclinical Data of Longer-acting Factor VIII for Hemophilia A Presented at International Congress. More
CSL Behring Awards Global Grants to Next Generation of Coagulation Researchers. More
Novo Nordisk and Neose Announce Completion of Initial Phase 1 Clinical Trial of NN7128 (long-acting factor VIIa). More
Bayer HealthCare Commits $2.5 Million in Funding to Advance Global Hemophilia Research and Patient Care. More
Baxter Announces Winners of “Picture Your Tomorrow, Today” Global Photo Contest. More
Bayer HealthCare Celebrates 20th Anniversary of Kogenate® Product Line and 8 Billion IU Milestone at 2008 WFH World Congress. More
New - Comprehensive Care Team Newsletter
WFH launches a new multidisciplinary newsletter for healthcare practitioners. You’ll find information on WFH activities for the multidisciplinary team. Read highlights from our Medical Advisory Board meeting last September, as well as updates from our various healthcare committees, such as progress in developing hemophilia specific assessment tools. More
2006 WFH Global Survey
Report on the Annual Global Survey 2006 includes selected demographic and other data on people with hemophilia (PWH), von Willebrand disease (VWD), other rare factor deficiencies, and inherited platelet disorders throughout the world. More
Empowering patients across nations
President Mark Skinner writes about the importance of patient involvement within the national health system. More
WFH Announces Appointment of Chief Executive Officer
MONTREAL, Canada, February 11, 2008: The World Federation of Hemophilia (WFH) announces the appointment of Claudia Black to the position of Chief Executive Officer effective immediately. Ms. Black had served as the interim CEO since September 2007. More
Hemophilia World: October 2007
Empowering patients across nations
Ecuador better equipped after training orthopedists and physiotherapists
NEWS RELEASE
World Hemophilia Day raises awareness, dispels misconceptions
April 15, 2007 – As organizations around the world plan activities to mark World Hemophilia Day on April 17, the theme adopted this year by the World Federation of Hemophilia (WFH) is simple but important: exercise is vital to good health and it’s no different for people with hemophilia than it is for anyone else. More
MEDIA ADVISORY
First-ever public service announcement for World Federation of Hemophilia
January 23, 2007 – The World Federation of Hemophilia (WFH) is about to broaden public understanding of the rare bleeding
disorder through a popular outlet. Thanks to support from Bayer HealthCare Pharmaceuticals, the WFH is launching a two-minute television Public
Service Announcement (PSA) to help promote awareness and understanding of hemophilia — an inherited bleeding disorder that is characterized by
prolonged or spontaneous bleeding. A relatively rare disorder, hemophilia affects about 3,000 Canadians and 17,000 Americans. Worldwide, an estimated
400,000 people have hemophilia.
The two-minute PSA provides an overview of how hemophilia affects
people with the disorder and the WFH’s role in improving treatment and care
throughout the world.
The PSA can be viewed online at http://www.wfh.org.
Hemophilia World: January 2007
WFH helps evacuate young patient caught in war zone
The WFH extends its hemophilia services to other bleeding disorders
WFH survey identifies 8 per cent more people with hemophilia
WFH News 2006
WFH News 2005
Last Updated January 2009
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