WFH members continue to make significant progress in identifying patients with bleeding disorders.
The latest WFH Global Survey shows an eight per cent increase in the number of people identified with hemophilia.
The 2005 survey also shows a 47 per cent increase over 2004 in reported patients with rare genetic bleeding disorders and platelet disorders. A detailed breakdown shows that factor VII deficiency and factor XI deficiency are the most common rare disorders identified.
Data from 98 countries identified 131,264 people with hemophilia, 45,001 people with von Willebrand disease, and 16,735 people with other bleeding disorders.
The WFH began collecting information on hemophilia care throughout the world in 1998. The seventh survey collects data on resources of care and treatment products, as well as information on the prevalence (percentage of the population affected) of infectious complications such as HIV and hepatitis C (HCV).
“WFH global surveys provide useful information to the patient organizations, hemophilia treatment centres, and health officials working with bleeding disorders,” says WFH president Mark Skinner. “I congratulate the volunteers for helping us collect the data.
“Global surveys help the WFH to measure the success of our programs and to present the case for improved hemophilia care to governments and international bodies like the World Health Organization.”
Mark Brooker
WFH Public Policy Officer
Last Updated: January 2007 |
