WFH News 2010

Gordon Clarke Becomes a Member of the Order of the British Empire

December 2010
The World Federation of Hemophilia (WFH) would like to congratulate past WFH vice-president programs Gordon Clarke on becoming a Member of the Order of the British Empire (MBE). The honour was announced this past summer in recognition of Gordon’s tireless work for people with hemophilia and other inherited bleeding disorders. More

WFH’s GAP Program Brings Treatment for All Closer in Mexico and Azerbaijan

December 2010
Azerbaijan and Mexico have seen significant improvements in hemophilia care and treatment in recent years, thanks to intensive efforts as part of the World Federation of Hemophilia’s (WFH) Global Alliance for Progress (GAP) program. More

Twinning for All — Making a Global Mission a Reality

December 2010
The WFH Twinning Program was established more than 15 years ago and since then, many national member organizations (NMOs) have experienced the importance and significance that twinning partnerships can have for people with hemophilia. More

Youth Issues — Preparing for Life as an Adult with Hemophilia

December 2010
As young boys with hemophilia grow up, not only do they experience the usual emotional and physical challenges of adolescence and early adulthood, but their relationships with family and caregivers also change when taking on more direct responsibility for their bleeding disorder. More

New and Returning Executive Members

October 2010
The WFH is pleased to announce the election of new executive committee members and the appointment of three vice presidents. Executive Committee members were elected to the Executive Committee at the WFH’s General Assembly on July 15, 2010, in Buenos Aires, Argentina. More

October 2010
The outstanding leadership and commitment of volunteers from around the world was recognized at the World Federation of Hemophilia (WFH) Awards Ceremony during Congress last July in Buenos Aires, Argentina. More

World Hemophilia Day 2010

September 2010
Hemophilia organizations around the globe proudly celebrated World Hemophilia Day, April 17, with activities, events, and campaigns based on the theme The Many Faces of Bleeding Disorders. More

In Memoriam

September 2010
The World Federation of Hemophilia and the community of patients with bleeding disorders are saddened by the passing away of
Ken Poyser on September 7, 2010. He is survived by his wife Darlene, their son Tony and his family.

Ken was a member of the WFH executive committee and has acted as Vice President Finance for many years. He was a quiet man with a vision: find a cure by facilitating hemophilia research with funding. He was made a member of the Order of Canada in December 2008 in recognition for his tireless efforts at the local, national and international levels.

Our deepest condolences to his family and many friends all over the world.

Hemophilia World Congress Issue

September 2010
The September issue is filled with stories from the Hemophilia 2010 World Congress, including an overview of the Awards Ceremony, coverage from the many medical and multidisciplinary sessions, and a review of the WFH General Assembly activities. Also included are summaries of World Hemophilia Day 2010 activities from around the world. PDF

Hemophilia 2014 World Congress

September 2010
Melbourne, Australia, was selected as the site for the 2014 WFH World Congress by members of the WFH General Assembly on July 15. For more highlights from the meeting, click here.

Resolution on the Supply of Safe High-Quality Clotting Factor Concentrates

September 2010
On July 15, 2010, at the World Federation of Hemophilia General Assembly, our national member organizations passed the following resolution on the Supply of Safe High-Quality Clotting Factor Concentrates. More

Hemophilia 2010 World Congress

Press Releases

July 11, 2010 – Addressing the underserved populations in our global family - XXIX International Congress of the WFH. PDF

July 11, 2010 – Latest World Federation of Hemophilia video podcast launched at Hemophilia 2010 World Congress. PDF

Hemophilia 2010 World Congress Backgrounder. PDF

WFH Advocacy Initiative 2006-2010

June 2010
In 2006, the WFH identified a growing need for training our member national hemophilia organizations (national member organizations, or NMOs) in the area of advocacy and lobbying. Consequently, we introduced a program of targeted Advocacy Training workshops from 2006-2010 for all regions of the world. More

Youth Leadership Program

June 2010
The WFH is expanding its youth programs to help foster the next generation of leaders in the bleeding disorders community and ensure that they are well prepared to take over a leadership role. The WFH youth leadership program includes fellowships/ scholarships, leadership skills training, and resources for young people. More

Health Economics and Outcome Assessments

June 2010
This WFH video podcast features a conversation about Health Technology Assessment (HTA) and Comparative Effectiveness Research (CER). Hosting the discussion is Brian O’Mahony, past president of the WFH. He is joined by Dr. Michael Lauer of the National Heart, Blood and Lung Institute (USA), and health economist Adam Hutchings (UK). Video

The Many Faces of Bleeding Disorders: United Together on World Hemophilia Day

April 15, 2010 – On World Hemophilia Day 2010, April 17, meet the many faces of bleeding disorders – united to achieve Treatment for All. Each year hemophilia organizations around the world celebrate World Hemophilia Day, increasing awareness of hemophilia and other bleeding disorders. PDF

WFH Corporate Partners show support on World Hemophilia Day

King of Prussia, PA, and Montreal, Canada, April 16, 2010 —Hemophilia B patients in the developing world will benefit from a recent donation of 1 million international units (IU) of factor IX medication made by CSL Behring to the World Federation of Hemophilia (WFH). The donation, channeled through WFH’s United Kingdom chapter, marks World Hemophilia Day 2010 and will support WFH’s progress in improving the diagnosis and treatment of hemophilia in developing countries through its Global Alliance for Progress (GAP) program. PDF

DEERFIELD, Ill., April 14, 2010 – In observance of World Hemophilia Day, Baxter International Inc. today reaffirmed its ongoing commitment to optimizing hemophilia care and improving the lives of people with hemophilia worldwide. PDF

Last updated August 2011