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Country: France
City: Paris
IHTC:
IHTC Paris AP-HP (Bicetre, Cochin, Necker - Enfants Malades)
Since September 2003, the three hemophilia centers of the Assistance Publique-Hopitaux de Paris have been federated, and function as one international hemophilia training centre.
Laboratoire d'hematologie, Hopital Jean Verdier
Avenue du 14 juillet
93140 Bondy, France
Tel.: 33 1 4802 6521
Email: yves.laurian@jvr.ap-hop-paris.fr
Website: www.ap-hop-paris.fr
Director: Thierry Lambert (Bicetre), Nathalie Stieltjes (Cochin), Chantal Rothschild (Necker)
Responsible for training: Thierry Lambert (Bicetre), Nathalie Stieltjes (Cochin), Chantal Rothschild (Necker)
Fellowship logistics coordinator: Yves Laurian
Year of IHTC designation: 1972
Areas of specialty: Children and adults; general hemophilia care for in- and out-patients; comprehensive clinics, orthopedic surgery and post-op rehabilitation, rehumatology, physiotherapy for children and adults; dental care and toher surgical fields. Education and training for home treatment for children, adolescents and family; laboratory and genetic diagnosis; genetic counseling, obstetrical management and prenatal diagnosis; psychosocial work.
The Paris International Hemophilia Training Centre is a three-site Hemophilia Treatment Centre (HTC), under the label of Paris AP-HP Hemophilia Treatment Centre (Paris AP-HP HTC). Each site has a comprehensive care program for patients with hemophilia and bleeding disorders. These sites, located in Paris or nearby suburbs, share some services, depending on the specificity of the hospital where they are located. Paris AP-HP HTC follows more than one thousand hemophilia patients (severe hemophilia, mild/moderate hemophilia, inhibitors) and patients with other congenital bleeding disorders (hemorrhagic disease from coagulation or platelet disorder). The three centres (Bicetre, Cochin, Necker - Enfants Malades) work closely together and are reference centres for primary hemophilia care centres and hospitals inside the Paris area (population 15 million). The fellos from the World Federation of Hemophilia are trained in any of/or all three of the sites, depending on their requests for specific training.
IHTC:
Hopital Bicetre
78 rue du General Leclerc
94270 Le Kremlin Bicetre, France
Tel.: 33 1 4521 2197
Fax: 33 1 4521 3997
Email: hemophilie.bicetre@bct.ap-hop-paris.fr
Website: www.bct.ap-hop-paris.fr
Director: Thierry Lambert
Responsible for training: Thierry Lambert, Roseline d'Oiron, Anne Rafowicz, Daniele Boucher (nursing)
Fellowship logistics coordinator:
DESCRIPTION OF TRAINING PROGRAM
Clinical activities: Pediatric and adult medical and surgical comprehensive care, including orthopedic, urologic, neurosurgical surgery (adults), dentistry, EENT, general surgery (children and adults), genetic counseling, HCV and HIV care.
Laboratory activities/research: A coagulation laboratory is associated with the HTC. Research is pricipally oriented towards anti-FVIII inhibitors and clinical trials on coagulation factors.
Multidisciplinary activities/research:
Additional information:
DESCRIPTION OF IHTC FACILITIES
Location: HTC Bicetre is located in the southern suburbs of Paris.
Climate: Temperate
Accommodation (residence, meals, etc...):
Transportation: The hospital is easily accessible by subway.
Language: French, English
Financial assistance: Dependent on WFH funds.
Cost of living (per week):
Communications tools for trainees:
Other local support provided for trainees:
IHTC:
Francois Joso Necker - Enfants malades
149 rue de Sevres
75015 Paris, France
Tel.: 33 1 4449 5273
Fax: 33 1 4449 5756
Email: hemophilie.necker@nck.ap.ap-hop-paris.fr
Website: www.nck.ap-hop-paris.fr
Director: Chantal Rothschild
Responsible for training: Chantal Rothschild, Marie-Francoise Torchet, Faizeh Legrand, Nathalie Pertuiset
Fellowship logistics coordinator:
DESCRIPTION OF TRAINING PROGRAM
Clinical activities: Pediatric medical and surgical comprehensive care, includign orthopedic surgery (children), neurosurgery (children) comprehensive care for central venous access devices for babies and children; genetic counseling, obstetrical management and prenatal diagnosis; comprehensive care for adults; HCV and HIV care.
Laboratory activities/research: A coagulation laboratory is associated with the centre. Research is oriented towards clinical trials with new therapies, national follow-up of the incidence of inhibitors and psychosocial aspects of long-term prophylaxis.
Multidisciplinary activities/research:
Additional information:
DESCRIPTION OF IHTC FACILITIES
Location: HTC Necker is located in Paris.
Climate: Temperate
Accommodation (residence, meals, etc...):
Transportation:
Language: French, English
Financial assistance: Dependent on WFH funds.
Cost of living (per week):
Communications tools for trainees:
Other local support provided for trainees:
IHTC:
Hopital Cochin
27 rue du Faubourg Saint-Jacques
75014 Paris, France
Tel.: 33 1 5841 2013
Fax: 33 1 5841 2010
Email: secretariat.hemophiles@cch.ap-hop-paris.fr
Website: www.cch.ap-hop-paris.fr
Director: Nathalie Stieltjes
Responsible for training: Nathalie Stieltjes, Valerie Roussel-Rober, Patricia Paugy, Nadra Ounnoughene, Agnes Hazouard (nursing)
Fellowship logistics coordinator:
DESCRIPTION OF TRAINING PROGRAM
Clinical activities: Genetic counseling, obstetrical management and prenatal diagnosis; HCV and HIV care; comprehensive care for children.
Laboratory activities/research: A coagulation laboratory is associated with the HTC. Research is pricipally oriented towards anti-FVIII inhibitors and clinical trials on coagulation factors.
Multidisciplinary activities/research: Orthopedic surgery, rehumatology, rehabilitation program by physiotherapist and physical medicine specialists, and radio labeled synoviorthesis for adolescents and adults; dental care in children wiht bleeding disorders, local hemostasis for dental extraction to allow extraction with minimal clotting factor requirement (children and adults)
Additional information:
DESCRIPTION OF IHTC FACILITIES
Location: HTC Cochin is located in Paris.
Climate: Temperate
Accommodation (residence, meals, etc...):
Transportation:
Language: French, English
Financial assistance: Dependent on WFH funds.
Cost of living (per week):
Communications tools for trainees:
Other local support provided for trainees:
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