Advocacy in Action: Achieving a stronger voice for hemophilia and other inherited bleeding disorders
What is Advocacy in Action?
The Advocacy in Action program was launched in 2010 to help national patient organizations bring about change through advocacy and achieve a stronger voice for inherited bleeding disorders globally. This program combines hands-on training and coaching, provision of project grants, and advocacy awards to share best practice among patient organization leaders.
Click here to read more about the Advocacy in Action program,
2010-2015.
Advocacy in Action workshops
Over the five-year program, the WFH will organize 12 thematic and geographic training workshops. They will be based on specific issues and needs and provide patient organizations with tailored advocacy training, individualized coaching and support, dedicated advocacy leadership and resources, and advocacy tools.
Advocacy in Action Workshop, Barcelona, Spain, December 2011
Advocacy in Action Workshop, Mexico City, Mexico, November 2011
Advocacy in Action Workshop, Paris, France, May 2011
Advocacy in Action Workshop, London, UK, December 2010
Advocacy Project Grants
These grants are designed to help patient organizations that participated in an Advocacy in Action workshop apply their new skills by designing and implementing an advocacy project in their country. The WFH offers a number of grants per year, ranging between $1,000-$5,000 US dollars. Proposals would be submitted to a WFH selection committee for review and approval of a project grant. Grant recipients also benefit from the assistance of a WFH advisor who is skilled in advocacy and lobbying techniques.
2011 Grants:
Latvia: “Stronger patients in Latvia”
Romania: “Understand hemophilia, act for life”
UK: “Equal compensation within the UK”
Poland: “Prophylaxis for all children up to 25 years”
Germany: “Compensation for infected hemophiliacs”
2012 Grants: Coming soon
Advocacy Recognition Award
This annual award recognizes outstanding progress in advocacy by a patient organization to strengthen the voice of inherited bleeding disorders. It is awarded to a patient organization that demonstrates best practices in the implementation of an advocacy project. Winners will be selected from submitted nominations by committee. The first award will be given at the WFH World Congress in Paris in 2012, and nominations will open in January 2012.
Advocacy Recognition Award questions and answers (PDF)
Advocacy Recognition Award nomination form
Click here to view Advocacy Training workshops from
2006-2010 for all regions of the world.
For more information on the Advocacy in Action program, contact Amanda Bok at abok@wfh.org.
Last Updated January 2012
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