Hemophilia 2008 World Congress
June 1-5, Istanbul, Turkey


SELECTED PROCEEDINGS

Plenaries

Dental Track

Laboratory Track

Medical Track

Musculoskeletal Track

Multidisciplinary Track


PLENARIES

CORNERSTONE OF GLOBAL DEVELOPMENT: 45 YEARS OF PROGRESS
Speaker: Mark Skinner, WFH President
Slides
Video

THE ROLE OF SYNOVECTOMY IN THE MANAGEMENT OF A TARGET JOINT
Speaker: Adolfo Llinas, Colombia
Summary Report
Slides

QUALITY OF LIFE IN HEMOPHILIA
Speaker: Alessandro Gringeri, Italy
Summary Report

ETHICAL CONSIDERATIONS IN CLINICAL INVESTIGATION
Speaker: Donna DiMichele, U.S.A.
Summary Report

HOW TO GET RID OF INHIBITORS
Speaker: Jean-M. Saint-Rémy, Belgium
Summary Report
Slides

ANIMAL MODELS OF BLEEDING AND TISSUE REPAIR
Speaker: Maureane Hoffman, U.S.A.
Summary Report

ADVANCES IN THE MANAGEMENT OF VIRAL HEPATITIS
Speaker: Harvey Alter, U.S.A.
Summary Report
Slides

BACK TO THE FUTURE: A HISTORY OF THE TREATMENT OF HEMOPHILIA
Speaker: Pier Mannucci, Italy
Slides
Video


DENTAL TRACK

MEET THE EXPERTS: MANAGEMENT OF TRAUMA (B1.6)
Chair: Eduardo Rey, Argentina
Summary Report
Panelists: Antonio Valiente Alvarez, Spain, and Wellington Cavalcanti, Brazil


LABORATORY TRACK

NEW APPROACHES IN THE MEASUREMENT OF COAGULATION (C2.6)
Chair: Jorgen Ingerslev, Denmark
Summary Report

Dynamic Evaluation of the Clotting Process in the Hemorrhagic Disorders
Benny Sorensen, Denmark

Laboratory Measurements for the Choice and Monitoring of Treatment in VWD
Giancarlo Castaman, Italy

Mild Hemophilia with Normal Results: Is It a Lab Phenomenon or a Local Issue?
John Lloyd, Australia
Slides

The Impact of the Cone and Plate(let) Analyzer
David Varon, Israel


MEDICAL TRACK

PROPHYLAXIS FOR SEVERE HEMOPHILIA: CLINICAL CHALLENGES IN THE ABSENCE AS WELL AS IN THE PRESENCE OF INHIBITORS (A1.1)
Chair: Victor Blanchette, Canada
Summary Report

Current Status of Factor Prophylaxis in the Hemophilia Population
Victor Blanchette, Canada

Prophylaxis in Patients with Inhibitors
Leonard Valentino, U.S.A.

Prophylaxis for Severe Hemophilia: Challenges for the First, Second and Third Decade of Life
Kathelijn Fischer, The Netherlands


PROGRESS IN THE MOLECULAR BIOLOGY OF INHERITED BLEEDING DISORDERS (B1.1)
Chair: David Lillicrap, Canada
Summary Report

Overview
David Lillicrap, Canada

Coagulation Proteins with Enhanced Biological Properties
Steven Pipe, United Kingdom

Bringing Hemophilia Gene Therapy to the Clinic
Kathy High, U.S.A.
Slides

Engineered Liver Cells for the Treatment of Hemophilia
Kazuo Ohashi, Japan

Cell-Based Strategies for Inherited Protein Deficiencies
Ali Ugur Ural, Turkey
Slides


INFECTIOUS DISEASES (C1.1)
Chair: Jorge Daruich, Argentina
Summary Report

HIV / HCV Co-Infection in Hemophilia
Jorge Daruich, Argentina

The Natural and Unnatural History of Hepatitis C Infection
Harvey Alter, U.S.A.

25 Years of HIV Research: What We Have Learned and What We Still Need to Know
Lucy Dorrell, United Kingdom

Variant Creutzfeldt-Jakob Disease: Transmission by Clotting Factor
James Ironside, United Kingdom


MUSCULOSKELETAL TRACK

INTERNATIONAL PROPHYLAXIS STUDY GROUP FINAL REPORT (D1.1)
Chair: Victor Blanchette, Canada
Summary Report

Overview of the International Prophylaxis Study Group
Victor Blanchette, Canada

Hemophilia Joint Health Score
Brian Feldman, Canada, and Sharon Funk, U.S.A.

Role of MRI for Detection of Early Arthropathy: A Proposed New International MRI Score
Bjorn Lundin, Sweden, and Andrea Doria, Canada
Slides (Lundin)
Slides (Doria)


MULTIDISCIPLINARY TRACK

VON WILLEBRAND DISEASE: ISSUES FOR WOMEN AND MEN (A1.4)
Chair: Ann-Marie Nazzaro, U.S.A.
Summary Report

VWD in Women: Presentation and Identification
Rezan Kadir, United Kingdom

VWD and VWD Prophylaxis Network: A New Treatment Concept
Thomas Abshire, U.S.A.

QoL for Patients with VWD: Nursing Perspective
Lara Oyesiku, United Kingdom

Patient Perspective
Martyn Cooper, United Kingdom

QoL for Patient with VWD: Psychosocial Perspective
Sylvia von Mackensen, Germany

Reproductive Concerns and VWD
Andra James, U.S.A.
Slides


SHARING A HARD LIFE: HOW HEMOPHILIA AFFECTS THE FAMILY (A2.4)
Chair: Ann Duffy, Ireland
Summary Report

Father’s Perspective
Aris Hashim, Malaysia

Mother’s Perspective
Haydee Benoit de García, Dominican Republic

Patient Perspective
Robert Lamberth, Australia

Healthcare Provider Perspective
Elizabeth Fung, United Kingdom


HOW ELDERLY PEOPLE WITH BLEEDING DISORDERS MANAGE THEIR CONDITION (C1.5)
Chair: June Ward, United Kingdom
Summary Report

Impact of Hemophilia on Everyday Life of Elderly Patients
Sylvia von Mackensen, Germany

Physiotherapy and the Hemophilia “Old Boys”
Ethelwym Remmers, South Africa
Slides

Multidisciplinary Approach of the Elderly Hemophilia Patient
Els Haan, The Netherlands


INNOVATIONS IN FACTOR THERAPIES FOR PEOPLE WITH BLEEDING DISORDERS (D1.2)
Chair: David Page, Canada
Summary Report

Solvent-Detergent Treatment of Mini-Pool Cryoprecipitate at Local Blood Centres
Magdy El-Ekiaby, Egypt

The Prospects for Longer-Lasting and Less Immunogenic Factor VIII and IX Concentrates
Paul Giangrande, United Kingdom

The Prospects for Gene Therapy in the Treatment of Bleeding Disorders
David Lillicrap, Canada

 

Updated August 2008

 

© Copyright World Federation of Hemophilia 2008