Printed Materials
English
Spanish
French
Other languages
Videos
WFH’s First-ever Television Commercial
Treatment for All – President’s Address
Training Modules
IHTC training modules
Price List and Order Form (members
and non-members)
Annual Report
Annual Report 2008
[English]
Congress Abstracts, Papers, and Proceedings
World Hemophilia Congress
[English]
2008
XXVIII International Congress of the WFH, Istanbul, Turkey
1-5 June 2008
[English & Español - CD-ROM]
State of the Art Book: Haemophilia, July 2008, Volume 14, Issue S3 Abstract Book: Haemophilia, May 2008, Volume 14, Issue S2
2006
XXVII International Congress of the WFH, Vancouver, Canada,
21-25 May, 2006
[English & Español - CD-ROM]
State of the Art book:
Haemophilia, Volume 12, Issue s3
Abstract book:
Haemophilia, Volume 12, Issue s2
2004
XXVI International Congress of the WFH, Bangkok, Thailand,
17-21 October, 2004 [English & Español - CD-ROM]
State-of-the-Art Book, Haemophilia, Volume 10,
Issue s4
Book of Abstracts, Haemophilia, Volume 10, Issue
s3
Dental Care
Dental Management of Patients with Inhibitors to Factor VIII or
Factor IX; Treatment of Hemophilia monograph no. 45.[English]
Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders; Treatment of Hemophilia monograph no. 40 [English]
Oral Care for People with Hemophilia or a Hereditary Bleeding Tendency; Treatment of Hemophilia monograph no. 27. Revised 2008 [English]
Primary Dental Care of Patients with Hemophilia; Treatment of Hemophilia monograph no. 3 [out of print]
Diagnosis and Treatment
(see also Dental Care, Gene Therapy, Genetic Counselling/Carriers, Haemophilia Journal, HIV, Hepaitis, Inhibitors, Musculoskeletal/Physiotherapy, Other Bleeding Disorders, von Willebrand/Women with Bleeding Disorders)
Acquired Hemophilia; Treatment of Hemophilia monograph no. 38 [English]
Circumcision in Hemophilia: An Overview; Treatment of Hemophilia monograph no. 30
[English]
Conduct in Clinical Trials;
Occasional Paper monograph no. 3
[English]
Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual
[English]
Emergency Care Issues in Hemophilia. Treatment of Hemophilia monograph no. 43.
[English]
Exercises for People with Hemophilia [English]
Guide to Developing a National Patient Registry
[English] [Français] [Español]
[Arabic] [Chinese] [Russian]
Guidelines for the Management of Hemophilia
[English] [Français] [Español]
[Chinese] [Russian]
Hereditary Plasma Clotting Factor Disorders and their Management; Treatment of Hemophilia monograph no. 4. Revised 2008 [English]
International Medical Card [English]
Looking after the Veins; Treatment of Hemophilia
monograph no. 32
[English]
Mild Hemophilia; Treatment of Hemophilia
monograph no. 41
[English]
Protocols for the Treatment of Hemophilia and von Willebrand Disease;
Treatment of Hemophilia monograph no. 14. Revised 2008 [English]
Symptomatic Carriers of Hemophilia; Treatment of Hemophilia monograph no. 46. [English]
The IHTCs of the World Federation of Hemophilia: A 30-Year Review; Occasional
Paper monograph no. 2
[English]
The WFH Hemophilia Centre Twinning Programme: Ten Years of Growth; Occasional
Paper monograph no. 4
[English]
Treatment Options in the Management of Hemophilia in Developing Countries; Treatment of Hemophilia monograph no. 37
[English]
General Guides
Exercises for People with Hemophilia
[English] [Français] [Español] [Russian]
[Chinese]
Go For It! (Atrévete)
[English/Spanish - Print only]
Growing Up with Hemophilia: Four Articles on Childhood
[English]
Hemophilia in Pictures
[English; Español; Français; Arabic; Russian; Chinese]
Hemophilia in Pictures Educator's Guide. New
[English] [Français] [Español]
[Arabic] [Chinese] [Russian]
Hemophilia playing cards: A new educational tool for children with hemophilia (print only) New
What are Inhibitors? New
[English] [Français] [Español] [Arabic] [Chinese] [Russian]
What are Rare Clotting Factor Deficiencies? booklet New
[English] [Français] [Español] [Arabic] [Chinese] [Russian]
What is Hemophilia? booklet
[English]
[Español]
[Français]
[Arabic]
[Russian]
[Chinese]
What is von Willebrand disease.
[English] [Español]
[Français]
[Arabic]
[Russian]
[Chinese]
Gene Therapy
An Introduction to Gene Therapy; Treatment of Hemophilia monograph no. 17 [out of print]
Gene Therapy for the Hemophilias;
Treatment of Hemophilia monograph no. 18. Revised 2008 [English]
Genetic Counselling / Psychosocial Issues
Genetic Counselling for Hemophilia; Treatment of Hemophilia monograph no. 25
[English]
Perspectives of Hemophilia Carriers; Treatment of
Hemophilia monograph no. 8
[English]
Psychosocial Care for People with Hemophilia; Treatment of
Hemophilia monograph no. 44
[English]
Haemophilia Journal (the official journal of the WFH)
Haemophilia Journal
[English]
Hemophilia Organization Resources
Action Planning; Hemophilia Organization
Development monograph
no. 2 Revised 2010 [English]
Developing and Sustaining an Effective Lobbying Campaign; Hemophilia Organization Development monograph no. 9
[English]
Fact Sheets for Government Advocacy:
-
Fact Sheet 1: Economic benefits of basic hemophilia treatment & care
[English]
-
Fact Sheet 2: Benefits of treating hemophilia with factor concentrate
[English]
-
Fact Sheet 3: Economic benefits of comprehensive hemophilia care
[English]
- Fact Sheet 4: Economic benefits of home therapy [English]
- Fact Sheet 5:
Benefits of a national patient registry [English]
- Fact Sheet 6: Advantages of a national tender system for clotting factor concentrates [English]
Fundraising; Hemophilia Organization Development monograph no. 7
[English]
Good Governance; Hemophilia Organization Development monograph no. 8
[English]
Group Dynamics and Team Building; Hemophilia Organization Development monograph no. 4. Revised 2009 [English]
Haemophilia Societies: Challenges and Development; Hemophilia
Organization Development monograph no. 1
[English]
Improving Care Beyond our Borders: A Twinning Guide for Hemophilia Treatment
Centres
[English]
Long-Term Planning for Leadership Change; Hemophilia
Organization Development monograph no. 6
[English]
Making Your Case Effectively: A Guide to Government Relations; Hemophilia Organization Development monograph no. 5
[English]
Media Relations; Hemophilia Organization Development monograph
no. 10. New [English]
Patient Outreach Guide for Hemophilia and Other Bleeding Disorders.
New [English] [Français] [Español]
[Chinese] [Russian]
[Arabic] (large file - 15MB)
Reaching Beyond our Borders: A Twinning Guide for Hemophilia Organizations
[English]
Recruiting and Retaining Volunteers; Hemophilia Organization Development monograph no. 3
[English]
Hemophilia World
Current Issue
[English]
Past Issues
[English]
Subscription Form
[English]
Hepatitis C
Guidelines on the Diagnosis, Management and Prevention of Hepatitis in
Hemophilia; Treatment of Hemophilia monograph no. 28
[English]
Hepatitis C Infection and Its Management; Treatment of Hemophilia monograph no. 21
[English]
Viral Hepatitis and Bleeding Disorders; Treatment of Hemophilia monograph no. 9
[English]
Human Immunodeficiency Virus (HIV)
Conception in HIV Discordant Couples;Treatment of Hemophilia monograph no. 26. Revised 2008 [English]
Drugs for HIV Infection; Treatment of
Hemophilia monograph no. 13
[English]
HIV and HCV Co-infection in Hemophilia; Treatment of
Hemophilia monograph no. 31. Revised 2008 [English]
Predicting the Long-term Risk of HIV Exposure by Cryoprecipitate; Treatment of Hemophilia monograph no. 20
[English]
The tragic history of AIDS in the hemophilia population, 1982– 1984; Occasional Papers monograph no. 6 [English]
Inhibitors
Diagnosis and Management of Inhibitors to Factors VIII and IX: An Intro
Discussion for Physicians;
Treatment of Hemophilia monograph no. 34
[English]
Inhibitors in Hemophilia: A Primer; Treatment of Hemophilia monograph no. 7. Revised 2008 [English]
Suggestions for the Management of Factor VIII Inhibitors; Treatment of Hemophilia monograph no. 10 [out of print]
What are Inhibitors? New
[English] [Français] [Español] [Arabic] [Chinese] [Russian]
Musculoskeletal / Physiotherapy
Articular Bleeding (Hemarthrosis) in Hemophilia: An Orthopedist's Point of View; Treatment of
Hemophilia monograph no. 23. Revised 2008. [English]
Chronic Hemophilic Synovitis: The Role of Radiosynovectomy;
Treatment of Hemophilia monograph no. 33
[English]
Exercises for People with Hemophilia [English]
Joint Replacement Surgery; Treatment of
Hemophilia monograph
no. 50. New. [English]
Manufactured Shoes and Orthopedic Shoes; Treatment of Hemophilia monograph no. 2. Revised 2008 [English]
Musculoskeletal Complications of Hemophilia: The Joint; Treatment of
Hemophilia monograph no. 6
[English]
Rehabilitation of Muscle Dysfunction in Hemophilia; Treatment of Hemophilia
monograph no. 24
[English]
The Pain Management Book for People with Haemophilia and Related Bleeding
Disorders; Treatment of Hemophilia monograph
no. 22
[English]
The Treatment of Hemophilia Bleeding with Limited Resources;
Treatment of Hemophilia monograph no. 1
[English]
Other Bleeding Disorders
Factor XI Deficiency and Its Management;
Treatment of Hemophilia monograph no. 16. Revised 2008 [English]
Platelet Function Disorders;
Treatment of Hemophilia monograph
no. 19. Revised 2008 [English]
The Rare Coagulation Disorders; Treatment of Hemophilia monograph no. 39 [English]
Safety and Supply
(See also Treatment Products,
Human Immunodeficiency Virus, Hepatitis C, and variant Creutzfeldt-jakob Disease)
Guide for the Assessment of Clotting Factor Concentrates. Second edition. Revised 2008 [English]
Proceedings of the WFH Global Forum on the Safety and Supply of Hemophilia
Treatment Products
Montreal, Canada, 2007
Montreal, Canada, 2005
Budapest, Hungary, 2003
[2000 and 2002 in Print Only]
The Safety of Plasma-Derived Versus Recombinant Concentrates; Occasional Paper monograph no. 5
[English]
Transmissible Agents and the Safety of Coagulation Factor Concentrates; Facts and Figures monograph no. 7
[English]
Statistics
Annual Global Survey 2008 (WFH report) New
Fact Sheets for Government Advocacy:
- Fact Sheet 1: Economic benefits of basic hemophilia treatment & care [English]
- Fact Sheet 2: Benefits of treating hemophilia with factor concentrate [English]
- Fact Sheet 3: Economic benefits of comprehensive hemophilia care [English]
- Fact Sheet 4: Economic benefits of home therapy [English
- Fact Sheet 5:
Benefits of a national patient registry [English]
- Fact Sheet 6: Advantages of a national tender system for clotting factor concentrates [English]
Treatment Centre Directories
International Hemophilia Training Centre Directory
[English]
Passport: Global Treatment Centre Directory
[English]
Treatment Products
(See also Safety and Supply)
Contract Fractionation; Facts and Figures
monograph no. 5.
Revised 2008 [English]
Desmopressin (DDAVP) in the Treatment of Bleeding Disorders: The First 20 Years; Treatment of Hemophilia
monograph no. 11
[English]
Fibrinolytic Inhibitors in the Management of Bleeding Disorders; Treatment of Hemophilia monograph no. 42 [English]
Guide to National Tenders for the Purchase of Clotting Factor Concentrates [English]
Key Issues in Hemophilia Treatment. Part 1: Products; Facts and Figures
monograph no. 1
[English]. Part 2:
Organizing a National Programme for Comprehensive Hemophilia Care
; Facts and Figures monograph no. 1 [English]
Local Hemostatic Blood Products: Fibrin Sealant and Platelet Gel; Treatment of
Hemophilia monograph no. 36. Revised 2008 [English]
Plasma-derived and Biotech Products: What is the Future of Hemophilia Therapy?
Occasional Paper monograph no.
1
[English]
Registry of Clotting Factor Concentrates. Eight edition, 2008;
Facts and Figures monograph no. 6
[English]
Small Pool Heat Treated Intermediate Purity Factor VIII Concentrate; Facts and Figures monograph
no. 3
[English]
The Preparation of Single Donor Cryoprecipitate; Facts and Figures monograph no. 2
[English]
Variant Creutzfeldt-Jakob Disease (VCJD)
Creutzfeldt-Jakob Disease; Treatment of
Hemophilia monograph no. 49. New
[English]
Creutzfeldt-Jakob Disease; Treatment of
Hemophilia monograph no. 12 [out of print]
Creutzfeldt-Jakob Disease and Hemophilia: Assessment of Risk; Treatment of
Hemophilia monograph no. 15
[English]
vCJD and Haemophilia: A Risk Assessment of Plasma-derived Products
[English]
Von Willebrand Disease / Women with Bleeding Disorders
Gynecological Complications in Women with Bleeding Disorders; Treatment of Hemophilia monograph no. 5
[English]
Pregnancy in Women with Inherited Bleeding Disorders; Treatment of Hemophilia
monograph no. 29
[English]
Protocols for the Treatment of Hemophilia and von Willebrand Disease;
Treatment of Hemophilia monograph no. 14. Revised 2008 [English]
Reproductive Health in Women with Bleeding Disorders; Treatment of Hemophilia monograph no. 48. New [English]
Symptomatic Carriers of Hemophilia; Treatment of Hemophilia monograph no. 46.[English]
The Basic Diagnosis and Clinical Management of von Willebrand Disease; Treatment of Hemophilia monograph no. 35. Revised 2008 [English]
von Willebrand Disease:
An Introduction for the Primary Care Physician; Treatment of Hemophilia monograph no. 47. New [English]
What is von Willebrand disease. New
[English] [Español]
[Français]
[Arabic]
[Russian]
[Chinese]
WHO- WFH Publications
Guidelines for the Development of a National Programme for Haemophilia
[English - Print only]
Prevention and Control of Haemophilia: Memorandum from a Joint WHO/WFH Meeting
[English - Print only]
Report of a Joint WHO/WFH/ISTH Meeting: Delivery of Treatment of Haemophilia
[English]
Report of a Joint WHO/WFH Meeting: Control of Haemophilia: Haemophilia Care in
Developing Countries
[English - Print only]
Report of a Joint WHO/WFH Meeting on the Control of Haemophilia: Modern
Treatment of Haemophilia
[English - Print only]
Publications Distributed by the WFH
Comprehensive Haemophilia Care in Developing Countries. 2001
[English - Print Only]
Emotional Support in Hemophilia.
2000
Genetics of Hemophilia A and B. Carol K. Kasper & Carolyn H. Buzin. 2007
Hemofilia. 2001
Living with Haemophilia. Fifth edition. 2002
Rare Bleedings in Haemophilia. 2002
[English - Print Only]
Von Willebrand Disease: An Introductory Discussion for Young Physicians. 2004
[English - Print Only]
Last Updated June 2010
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