WFH President's Plenary, Hemophilia 2010 World Congress
Building our global family – achieving treatment for all
Building our global family by reaching out to women, children and youth and those in sub-Saharan Africa to achieve Treatment for All. The World Federation of Hemophilia (WFH) has committed to recognizing and incorporating the critical and important challenges that are faced by women with bleeding disorders within our global family. Videos
Achieving Treatment for All: Hemophilia and Bleeding Disorders Educational Series
"Our Lives With Hemophilia: The Stories of Vaibhav and Paul"
The "Our Lives With Hemophilia: The Stories of Vaibhav and Paul" is the latest video podcast in the Achieving Treatment for All: Hemophilia and Bleeding Disorders Educational Series. This story features Paul Wilton, of London, Canada, and Vaibhav Nehra, of New Delhi, India. Throughout the video podcast, these young men, their families, and care givers provide their perspectives into how they have dealt with hemophilia and what they expect for their future.
“The Many Faces of Bleeding Disorders – United to Achieve Treatment for All”
This video podcast celebrates the whole bleeding disorders community – people with hemophilia and symptomatic carriers, females and males with von Willebrand disease, as well as those with rarer factor deficiencies, and inherited platelet disorders.
“Together, we care”
Together, we care” Video Podcast explains how comprehensive care makes a difference in the lives of people with bleeding disorders. The video podcast highlights how comprehensive care teams improve patients’ overall health from both patient and healthcare professional perspectives.
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Twinning Program
Chisinau
– Warsaw
The latest video in the Twinning series follows patients and participants in the Treatment Centre Twinning partnership between Chisinau, Moldova, and Warsaw, Poland.
Jordan
– Toronto
The new WFH Twinning Video shows the impact of the twinning partnership between Toronto and Central Ontario Region chapter of the Canadian Hemophilia Society and the Jordanian Hemophilia Society. It follows people such as Abdulaziz Kahleed Al-Shirif, a young man with hemophilia, and captures how hemophilia treatment and care in Jordan has improved because of the Twinning Program.
Lima – Fort Worth
The 10-minute documentary is the first of a video series on the WFH Twinning Program. It was filmed in Peru in April 2008 as the twinning of the Hospital Nacional Dos De Mayo in Lima and the Fort Worth Comprehensive Hemophilia Center in Fort Worth, Texas, was coming to its conclusion.
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Other videos
2010
Living with Hemophilia: An interview with Mark Skinner
WFH President Mark Skinner shares his personal experience of living with hemophilia and shows how he treats the disorder with an infusion of clotting factor concentrate.
Health Economics and Outcome Assessments: Sustaining Hemophilia Care in a Tightening Economy (June 2010)
This WFH video podcast features a conversation about Health Technology Assessment (HTA) and Comparative Effectiveness Research (CER). Hosting the discussion is Brian O’Mahony, past president of the WFH. He is joined by Dr. Michael Lauer of the National Heart, Blood and Lung Institute (USA), and health economist Adam Hutchings (UK).
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2006-2008
WFH: The Cornerstone of Global Development,
45 Years of Progress
WFH President Mark Skinner describes the organization’s progress in achieving Treatment for All people with hemophilia and other bleeding disorders around the world over the past 45 years.
WFH launches its first television announcement (April 2007)
The WFH has created its first television Public Service Announcement (PSA) to help raise awareness about hemophilia.
Treatment for All – President’s Address (May 2006)
President Mark Skinner outlines the WFH’s strategic vision of Treatment for All “ that one day, treatment will be available for all those with inherited bleeding disorders around the world.
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