Hemophilia 2006 World Congress
Vancouver, Canada
The WFH Nurses Committee contributes to the development of the multidisciplinary program of the WFH World Congress. In addition to nursing sessions in the main program, a pre-congress nurses workshop featured sessions for both nurses new to hemophilia care as well as those with experience in the field. Participants heard how better awareness and knowledge about rare bleeding disorders, coupled with earlier screening and diagnosis will improve care, medical outcomes and patient quality of life.
- Basic concepts in hemophilia. Regina B. Butler, R.N.
The Children’s Hospital of Philadelphia
This PowerPoint presentation describes fibrin clot formation, patterns of inheritance, carrier states, diagnosis, levels of hemophilia severity, sites of bleeding, as well as an overview of treatment and management, including prophylaxis. Presentation
(also presented at the 2004 World Congress in Bangkok)
- History-taking and assessment of bleeds. Regina B. Butler, R.N. The Children’s Hospital of Philadelphia
It is essential to take an accurate and detailed history when assessing bleeding episodes and trauma in individuals with a bleeding disorder. This PowerPoint presentation outlines the basic questions to ask and steps to take to determine appropriate care for various kinds of bleeds. Presentation
(also presented at the 2004 World Congress in Bangkok)
- Factor XIII case studies.
Mary Edgar,
Haemophilia Nurse Specialist, Bristol Haemophilia Centre, UK. Presentation
- Oral health education: How can we help as nurses. Andrew Brewer, Chair, WFH Dental Committee. Presentation
- Overview of rare coagulation deficiencies. Factor VII, Factor XI, Glanzmann Thrombasthenia.
Nathalie Aubin,
The Montreal Children’s Hospital, McGill University Health Centre. Presentation
- The care of patient deficit in Factor XIII with an inhibitor. Nadine Alliaume,
Nurse Coordinator, Hemophilia care centre, Hôpital Edouard Herriot – Lyon, France. Presentation
- The evolution of non-medical prescribing in the United Kingdom and it’s potential impact on haemophilia service provision. Angela Westoby,
St James’ University Hospital, Leeds, UK. Presentation
- The missing factor - Living without Factor VII. Becky Sands. Presentation
Hemophilia 2004 World Congress
Bangkok, Thailand
- Utilising technology to provide education and support to children living with haemophilia in rural and remote communities. Anne Jackson,
Clinical Nurse-Haemophilia
Women’s and Children’s Hospital,
Adelaide, Australia
Our aim is to help families feel supported, to live independently in the community of their choice, and to have access to appropriate health care. Presentation
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Last Updated November 2006 |
