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World Federation of Hemophilia marks 50 Years of Advancing Treatment and Awareness for All on World Hemophilia Day

April 2013 — The global bleeding disorders community will come together on April 17 to mark World Hemophilia Day. This event takes on a special significance as it coincides with the 50th anniversary of the World Federation of Hemophilia (WFH). Click here >

Canadian and global bleeding disorders communities mark historical anniversaries on World Hemophilia Day

April 2013 — The Canadian and global bleeding disorders communities will come together on April 17 to mark World Hemophilia Day. Making the event even more special this year is that the Canadian Hemophilia Society (CHS) is marking its 60th anniversary and the World Federation of Hemophilia (WFH) its 50th. Click here >

ISTH endorses the second edition of the World Federation of Hemophilia’s Guidelines on the Management of Hemophilia

April 2013 — In its careful review, the ISTH noted the involvement of many experts from around the world, not only within the writing group but also in the elaborate review process. The society stated that these practical guidelines for the management of hemophilia clearly incorporate a wide range of views, and that the recommendations are consistent with current best practice. Click here >

Elizabeth Myles appointed WFH’s new Chief Operating Officer
February 2013 — John E. Bournas, WFH CEO/executive director, announced the appointment of Elizabeth Myles to the newly created position of WFH chief operating officer. Elizabeth, formerly WFH director of communications and public policy, has been with the WFH since 1998. This new role will ensure continued exchange of information and collaboration between all WFH departments.

Inhibitor rates related to treatment product in previously untreated patients (PUPs)
January 2013 — An international study of risk factors for inhibitors in children with severe hemophilia A appears to have identified a difference in inhibitor rates between different types of clotting factor concentrates. Click here >

Gene Therapy for Hemophilia: Addressing the Coming Challenges of Affordability and Accessibility
January 2013 — In this editorial published in Molecular Therapy, past WFH President Mark W. Skinner explores the advocacy challenges that will emerge around the world as new treatments for hemophilia, including gene therapy, become a reality. Click here >

Close the Gap campaign announcement
January 2013 — As part of the WFH's leadership transition, Mr. Weill will now assume the leadership role as campaign co-chair. Click here >

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