 World Hemophilia Day 2012 resources now available
World Hemophilia Day 2012 resources are now available. We invite all patient organizations, chapters, hemophilia treatment centres, and our partners to get involved this year. There are several tools to support you including a poster, template press release, and ideas for activities. Click here.
WFH appoints John Bournas as new CEO/Executive Director
 The World Federation of Hemophilia is pleased to announce the appointment of John Bournas as CEO/Executive Director. Mr Bournas brings over fifteen years of senior managerial experience in the healthcare and not-for-profit sectors and international experience as a diplomat. Read more here.
Report on the WFH Annual Global Survey 2010
The Report on the WFH Annual Global Survey 2010 is now available. It includes selected demographic and other data on people with hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world. Click here to read more and download the report.
Gene therapy trial for hemophilia B shows
promising results
The first unequivocal evidence of success in gene therapy for hemophilia B was published online Saturday in the New England Journal of Medicine. Six patients with severe hemophilia B responded to injections of a normal factor IX gene. Read more here.
WFH 2012 World Congress: Submit your abstracts by January 15, 2012!
The WFH 2012 World Congress Program Committee is welcoming the submission of abstracts for free paper or poster presentations. Please register your abstract online by January 15, 2012. Late-breaking abstract submissions will also be accepted until January 15. Remember to sign up or renew your WFH membership today and save (up to €55) on registration fees.
WFH Advocacy in Action workshop provides strategies to advocate with the government
 The fourth Advocacy in Action workshop was held in Barcelona, Spain, from 2-4 December 2011. Thirteen participants came from the Middle East, Africa, and Eastern Europe to work on “Multiplying voices: using partnerships and alliances to advocate with the government.”
HemoAction Games now also available in Spanish and French!
Children around the world can now learn about hemophilia in the language they know best: play! The WFH has recently launched the HemoAction games, available online in English, French, and Spanish. More about the games here.
New resources
 Hemophilia World ‒ December 2011
The December 2011 edition of the newsletter is now available. PDF
The Structure and Functions of Comprehensive Care
This short Fact Sheet describes how comprehensive HTCs are set up and the ways in which they improve the overall health of patients with bleeding disorders PDF. Also available in Spanish, French, Arabic, Chinese, and Russian.
Assessment and Management of Pain in Hemophilia Patients
This monograph highlights the prevalence and devastating impact of pain in hemophilia patients, reviews currently available treatment options, and identifies the unmet needs for appropriate pain management. PDF
Hemophilia Societies: Challenges and Development
This monograph outlines the common challenges faced by hemophilia societies at various stages of development and offers practical solutions to help these organizations meet the needs of people with bleeding disorders. PDF
Medical Advisory Board News
The December 2011 edition of the newsletter is now available. Find out more about MAB activities here.
Congratulations to the 2011 recipient of the
Susan Skinner Memorial Fund
 Congratulations to Alexandra L. Johnson on becoming the most recent recipient of a Susan Skinner Memorial Fund Scholarship. A dedicated volunteer leader, Alexandra was selected by the WFH USA Board from a group of six eligible applicants. To read more information on Alexandra, click here.
The WFH’s multidisciplinary committee nominations
The WFH’s multidisciplinary committees are actively seeking nominations for the 2012-2014 term. Each of the committees is an official international working committee recognized by the Medical Advisory Board of the WFH. Click here if you would like to put your name forward for nomination.
WFH International Awards: Call for nominations ‒ deadline March 16, 2012
The WFH Volunteer Awards began in 2004 as an opportunity to recognize the outstanding leadership provided by our volunteers to further our vision of Treatment for All. For more information and to nominate someone for one of these awards, click here.
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