World Hemophilia Day 2010 ― April 17
Hemophilia organizations around the globe proudly celebrated World Hemophilia Day, April 17, with activities, events, and campaigns based on the theme The Many Faces of Bleeding Disorders.
Click here to view some of the highlights reported by the different regions.
“The Many Faces of Bleeding Disorders – United to Achieve Treatment for All” video podcast
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For World Hemophilia Day 2010, the WFH is proud to launch “The Many Faces of Bleeding Disorders” video podcast. This video podcast celebrates the whole bleeding disorders community – people with hemophilia and symptomatic carriers, females and males with von Willebrand disease, as well as those with rarer factor deficiencies, and inherited platelet disorders.
The video podcast provides an overview of the various types of bleeding disorders, and:
- Features the impact of these conditions through global patient perspectives, including:
- Paul Wilton, severe hemophilia A, Canada
- Pam Wilton, symptomatic carrier of hemophilia, Canada
- Susan Halimeh, von Willebrand disease, Germany
- Gabriel Lottaz, factor I deficiency, Switzerland
- Includes a call-to-action for access and improved patient standard of care, featuring commentary from Paula Bolton-Maggs, D.M., FRCP, FRCPath, FRCPCH, consultant hematologist, Manchester Royal Infirmary and member, Executive Committee, WFH
If you would like to make a donation to support the World Federation of Hemophilia, click here.
Video transcripts are available in:
- Arabic
- Bengali
- Simplified Chinese
- Hindi
- Latvian
- Russian
- Tamil
Dubbed and subtitled versions of “The Many Faces of Bleeding Disorders” video podcast are available in:
- Bulgarian
- Simplified Chinese
- Korean
- Polish
Dubbed versions of “The Many Faces of Bleeding Disorders” video podcast are available in:
- Bengali
- Hindi
- Japanese
- Tamil
Subtitled versions of the “The Many Faces of Bleeding Disorders” video podcast are available in:
- Arabic
- Brazilian Portuguese
- Simplified Chinese
- Dutch
- Portuguese
- Russian
This video podcast was made possible with funding from Baxter Healthcare Corporation.
We invite all patient societies, chapters, hemophilia treatment centres and our partners to get involved in World Hemophilia Day this year. And we have many tools to help you, including template press releases, posters, fact sheets, and ideas for activities.
For more information, please contact WFH communications manager Sarah Ford at sford@wfh.org.
We wish you all a successful World Hemophilia Day 2010!
“The Many Faces of Bleeding Disorders” Video Podcast
World Hemophilia Day 2009
World Hemophilia Day is supported by funding from:
