Our Committees
The WFH thanks the many volunteers who dedicate their expertise and time to serve on our committees, each of which focuses on a particular aspect of hemophilia treatment and care.
Medical Advisory Board: 2020 to 2022
The Medical Advisory Board (MAB) is responsible for recommending policy on specific medical and clinical issues to the Board of Directors of the WFH. Members include all medical members of the WFH Board of Directors, and the chairs of the Coagulation Product Safety, Supply, and Access (CPSSA), Data and Demographics, World Bleeding Disorders Registry (WBDR), von Willebrand Disease and Rare Bleeding Disorders, Women with Inherited Bleeding Disorders, Dental, Laboratory Science, Musculoskeletal, Nurses and Psychosocial committees.
Medical Advisory Board (MAB) chair
Glenn Pierce
Vice President, Medical
U.S.A.
Members
Saliou Diop
Medical board member
Senegal
Miguel Escobar
Medical board member
U.S.A.
Cedric Hermans
Medical board member
Belgium
Barbara Konkle
Medical board member
U.S.A.
Ex officio
Cesar Garrido
President
Venezuela
Committee Chairs
Marlene Beijevelt
Nurses Committee chair
The Netherlands
Susan Cutter
Psychosocial Committee chair
U.S.A.
Alfonso Iorio
WFH WBDR Steering Committee co-chair
Canada
Radoslaw F. Kaczmarek
Coagulation Product Safety, Supply, and Access (CPSSA) Committee chair
Poland
Michelle Lavin
von Willebrand Disease and Rare Bleeding Disorders Committee chair
Ireland
Lochana Nanayakkara
Dental Committee chair
U.K.
Gianluigi Pasta
Musculoskeletal Committee chair
Italy
Dawn Rotellini
Women with Inherited Bleeding Disorders Committee chair
U.S.A.
Jeff Stonebraker
Data and Demographics Committee chair
U.S.A.
Pierre Toulon
Laboratory Science Committee chair
France
For more information on the Medical Advisory Board, contact us at [email protected]
Accreditation Committee: 2018 to 2020
The Accreditation Committee is responsible for reviewing applications made to the WFH by hemophilia organizations. The Committee decides which organizations should become associate or full national member organizations (NMOs).
Chair
Barry Flynn
Vice-president, finance
U.K.
Members
Saliou Diop
Medical board member
Regional advisor, Africa
Senegal
Magdy El Ekiaby
Medical board member
Regional advisor, Middle East
Egypt
Cesar Garrido
Lay board member
Regional advisor, Central America & Caribbean (CAC)
Venezuela
Cedric Hermans
Medical board member
Regional advisor, Europe (Central & Eastern – CEE) and Central Asia
Belgium
Carlos Safadi Márquez
Lay board member
Regional advisor, South America
Argentina
Glenn Pierce
Vice-president, medical
Regional advisor, North America
U.S.A.
Alain Weill
President
Regional advisor South Asia & East Asia
France
Deon York
Lay board member
Regional advisor, Southeast Asia & Western Pacific
New Zealand
For more information about the Accreditation Program, contact us at [email protected]
Ethics Advisory Committee: 2018 to 2020
The Ethics Committee is a sub-committee of the Board of Directors that meets as needed to advise on perceived ethical issues. The committee maintains a two-way consultation process with the Board.
Chair
Carlos Safadi Márquez
Lay board member
Argentina
Members
Barbara Konkle
Medical board member
U.S.A.
Ex officio
Alain Baumann
WFH CEO
France
Alain Weill
President
France
Coagulation Product Safety, Supply, and Access Committee: 2020 to 2022
The WFH Coagulation Product Safety, Supply, and Access (CPSSA) Committee oversees all WFH activities related to safety and supply issues. It includes patients, clinicians, and regulators.
Chair
Radoslaw F. Kaczmarek
Poland
Members
Magdy El Ekiaby
Egypt
Dan Hart
U.K.
Cedric Hermans
Medical board member
Belgium
Anneliese Hilger
Germany
Craig Hooper
U.S.A.
Mike Makris
U.K.
Declan Noone
Ireland
Brian O'Mahony
Ireland
David Page
Canada
Flora Peyvandi
Italy
Steven Pipe
U.K.
Thomas Sannié
France
Uwe Schlenkrich
Germany
Mark Skinner
U.S.A.
Alok Srivastava
India
Ex officio
Glenn Pierce
Vice President, Medical
U.S.A.
Cesar Garrido
President
Venezuela
For more information on the CPSSA Committee, contact us at [email protected]
Data and Demographics Committee: 2020 to 2022
The WFH Data and Demographics Committee oversees WFH activities related to the collection, management, and analysis of data collected through the Annual Global Survey. The Data and Demographics Committee includes data experts, clinicians, and patient leaders. The Committee is responsible for publishing the Report on the Annual Global Survey.
Chair
Jeff Stonebraker
U.S.A.
Committee members
Magdy El Ekiaby
Egypt
Emna Gouider
Tunisia
Alfonso Iorio
Canada
Mike Makris
U.K.
Jamie O’Hara
U.K.
Michael Recht
U.S.A.
Ex officio
Glenn Pierce
Vice President, Medical
U.S.A.
Cesar Garrido
President
Venezuela
Annual Global Survey reviewers
Paula Bolton-Maggs
U.K.
Randall Curtis
U.S.A.
Suely Rezende
Brazil
Mike Soucie
U.S.A.
Alok Srivastava
India
For more information on the Data and Demographics Committee, contact us at [email protected].
Dental Committee: 2020 to 2022
The aim of the Dental Committee is to raise awareness of the need for good oral healthcare in the hemophilia community and to develop strategies to deliver it to all affected patients.
Chair
Lochana Nanayakkara
U.K.
Vice-chair
Branislav Bajkina
Serbia
Secretary
Miryam Parreira
Argentina
Members
Zikra Alkhaval
Saudi Arabia
Irakli Chachua
Georgia
Laura Beatriz Isidro Olan
Mexico
Maria Elvira Pizzigath Correa
Brazil
Rebecca Schaffer
U.S.A.
Graeme Ting
New Zealand
Norjehan Yahaya
Malaysia
For more information on the WFH Dental Committee, contact Miryam Parreira at [email protected].
Humanitarian Aid Advisory Committee: 2018 to 2020
The Humanitarian Aid Advisory Committee is responsible for overseeing the WFH Humanitarian Aid Program. It determines strategy and overall policies and procedures. It provides a general oversight of products donated by different manufacturing companies and ensures effective donation and reporting mechanisms. The committee also ensures that the distribution of product donations follows the current WFH criteria for selection of recipient countries, taking into consideration WFH agreements with countries, where applicable.
Chair
Glenn Pierce
Vice-president, medical
U.S.A.
Megan Adediran
Nigeria
Saliou Diop
Medical board member
Senegal
Amy Dunn
WFH USA board member
U.S.A.
Magdy El Ekiaby
Medical board member
Egypt
Radoslaw F. Kaczmarek
Poland
Barbara Konkle
Medical board member
U.S.A.
Mark Skinner
WFH USA board member
U.S.A.
Alain Weill
President
France
For more information on the Humanitarian Aid Committee, contact us at [email protected].
International External Quality Assessment Scheme Committee (IEQAS): 2018 to 2020
The International External Quality Assessment Scheme (IEQAS) is operated by the U.K’s National External Quality Assessment Scheme for Blood Coagulation, based in Sheffield, U.K.
Members
Glenn Pierce
Vice-president, medical
U.S.A.
Scheme Director
Steven Kitchen
U.K.
Scheme Manager
Timothy Woods
U.K.
Scheme Deputy Manager
Ian Jennings
U.K.
Scheme Program Scientist
Dianne Kitchen
U.K.
Laboratory Science Committee Vice-chair
Pierre Toulon
France
International Hemophilia Training Centre Committee: 2018 to 2020
The aim of the International Hemophilia Training Centre (IHTC) Program is to give healthcare professionals from developing countries training in the diagnosis and management of hemophilia and other bleeding disorders.
Chair
Miguel Escobar
U.S.A.
Members
Glenn Pierce
Vice-president, medical
U.S.A.
IHTC Director
Daniela Neme
Argentina
IHTC Director
Johnny Mahlangu
South Africa
IHTC Director
Huyen Tran
Australia
Musculoskeletal Committee chair
Greig Blamey
Canada
Laboratory Science Committee chair
Steve Kitchen
U.K.
Nurses Committee chair
Kate Khair
U.K.
Dental Committee chair
Graeme Ting
New Zealand
Laboratory Science Committee: 2020 to 2022
The WFH Laboratory Science Committee raises awareness of standards in the diagnosis of hemophilia and other inherited bleeding disorders.
Chair
Pierre Toulon
France
Vice-chair
Silmara Montalvao
Brazil
Members
Annette Bowyer
U.K.
Carlos de Brasi
Argentina
Dong Chen
U.S.A.
Tulasi Geevar
India
Emna Gouider
Tunisia
Anastasia A. Khasiani
Kenya
Megan Sutherland
U.K.
For more information on the Laboratory Science Committee, contact us at [email protected].
Musculoskeletal Committee: 2020 to 2022
The role of the WFH Musculoskeletal Committee is to provide education, exchange treatment experiences, and promote research and training on the management of musculoskeletal complications in hemophilia. As well as attending scientific meetings, members of the group visit developing countries to assist, teach, and train colleagues, patients and their families.
Chair
Gianluigi Pasta
Italy
Senior Vice-chair
Cesar Haddad
Lebanon
Junior Vice-chair
Carla Daffunchio
Argentina
Secretary
Antonio Gavrilovski
Macedonia
Member-at-Large
Cindy Bailey
U.S.A.
For further information on the WFH Musculoskeletal Committee, contact Antonio Gavrilovski, at [email protected].
Nurses Committee: 2020 to 2022
The vision of the WFH Nurses Committee is to improve the quality of care of patients with hemophilia and other bleeding disorders throughout the world. This is achieved by enhancing nursing practices and making nursing an integral part of a multidisciplinary healthcare team.
Chair
Marlene Beijevelt
The Netherlands
Vice-chair
Christine Guelcher
U.S.A.
Members
Khalid A. R. Al Habaybia
U.A.E.
Andrew Atkins
Australia
Anjalin D’Souza
India
Cathy Harrison
U.K.
Lori Laudenbach
Canada
Brian Ramsay
New Zealand
Marcella Sisdelli
Brazil
For more information on the WFH Nurses Committee, contact Marlene Beijlevelt, at [email protected].
Psychosocial Committee: 2020 to 2022
The objective of the WFH Psychosocial Committee is to improve the quality of care—and quality of life—of people with bleeding disorders. This is achieved by making psychosocial care an integral part of a multidisciplinary approach to healthcare.
Chair
Susan Cutter
U.S.A.
Vice-chair
Silvina Graña
Argentina
Secretary
Frederica Cassis
Brazil
Members
Patricia Cabré
Spain
Gaby Golan
Israel
Richa Mohan
India
Taheri Nourallah
Iran
Mohsena Olath-Carramtall
Mauritius
Loretta Riley
Australia
Diane Standish
U.S.A.
For more information on the WFH Psychosocial Committee, contact Frederica Cassis, at [email protected].
Centre Twinning: 2018 to 2020
The Centre Twinning Committee is responsible for reviewing the WFH Centre Twinning Program. The Centre Twinning Committee examines twinning partnerships between hemophilia treatment centres and includes medical members of the Board of Directors as well as other twinning representatives.
Chair
Jayson Stoffman
Canada
Shasikant Apte
India
Yacouba Diallo
Mali
Dan Hart
U.K.
Margareth Ozelo
Brazil
Glenn Pierce
Vice-president, medical
U.S.A.
Organization Twinning: 2018 to 2020
The Organization Twinning Committee is responsible for reviewing the WFH Organization Twinning Program and formulating recommendations. The Organization Twinning Committee examines twinning partnerships among hemophilia organizations and youth groups. The Committee includes lay members of the Board of Directors as well as other twinning representatives.
Chair
Deniece Chevannes
U.S.A.
Nurul Islam
Bangladesh
Milena Pirnat
Canada
Yuri Zhulyov
Russia
For more information on the Organization Twinning Committee, contact us [email protected].
von Willebrand Disease and Rare Bleeding Disorders Committee: 2020 to 2022
The von Willebrand Disease and Rare Bleeding Disorders (VWD-RBD) Committee’s mandate is to develop and recommend activities for WFH programming to enhance access to treatment for von Willebrand disease (VWD), rare bleeding disorders, and inherited platelet disorders.
Chair
Michelle Lavin
Ireland
Members
Magdy El Ekiaby
Egypt
Augusto Federici
Italy
Paula James
Canada
Claudia Khayat
Lebanon
Jameela Sathar
Malaysia
Karin van Galen
The Netherlands
Baiba Ziemele
Board member
Latvia
For more information on the VWD-RBD Committee, contact us [email protected].
WFH World Bleeding Disorders Registry (WBDR) Steering Committee: 2020 to 2022
The WFH World Bleeding Disorders Registry (WBDR) Steering Committee oversees the development and implementation of the WBDR and activities related to the collection, management, and analysis of data collected through the WBDR.
Co-Chairs
Members
Saliou Diop
Medical board member
Senegal
Cedric Hermans
Medical board member
Belgium
Barbara Konkle
Medical board member
U.S.A.
Declan Noone
Ireland
Jamie O'Hara
U.K.
Ex officio
Glenn Pierce
Vice President, Medical
U.S.A.
Cesar Garrido
President
Venezuela
For more information on the WBDR, contact us at [email protected].
Women with Inherited Bleeding Disorders Committee: 2018 to 2020
The Women with Inherited Bleeding Disorders Committee is responsible for developing and recommending activities for WFH programming to enhance access to care and treatment for women with inherited bleeding disorders, including carriers of hemophilia.
Chair
Dawn Rotellini
Lay board member
U.S.A.
Members
Rezan Abdul-Kadir
U.K.
Susie Couper
Australia
Roshni Kulkarni
U.S.A.
Latifa Lamhene
Algeria
Anupama Pattiyeri
India
Baiba Ziemele
Latvia
Youth Committee: 2018 to 2020
The Youth Committee develops complimentary activities for the national member organization (NMO) Training Program and educational materials geared towards young leaders in the international bleeding disorders community. It provides advice on current and new youth-related activities for the WFH.
Chair
Michael van der Linde
The Netherlands
Jodarsen P. Arnachellum
Mauritius
Ashrit B.K.
Nepal
Amanda Brito del Pino Mouro
Uruguay
Rana Mahmoud
Lebanon
Lauren Nyhan
New Zealand
Jorge Antonio Rodriguez Abrego
Panama
Nikole Scappe
U.S.A.
Deon York
Lay board member
New Zealand