Our Committees

The WFH thanks the many volunteers who dedicate their expertise and time to serve on our committees, each of which focuses on a particular aspect of hemophilia treatment and care.

 

 

 

Medical Advisory Board: 2020 to 2022

The Medical Advisory Board (MAB) is responsible for recommending policy on specific medical and clinical issues to the Board of Directors of the WFH. Members include all medical members of the WFH Board of Directors, and the chairs of the Coagulation Product Safety, Supply, and Access (CPSSA), Data and Demographics, World Bleeding Disorders Registry (WBDR), von Willebrand Disease and Rare Bleeding Disorders, Women with Inherited Bleeding Disorders, Dental, Laboratory Science, Musculoskeletal, Nurses and Psychosocial committees.

Medical Advisory Board (MAB) chair
Glenn Pierce
Vice President, Medical
U.S.A.

Members

Saliou Diop
Medical board member
Senegal

Miguel Escobar
Medical board member
U.S.A.

Cedric Hermans
Medical board member
Belgium

Barbara Konkle
Medical board member
U.S.A.

Ex officio
Cesar Garrido
President
Venezuela

Committee Chairs

Marlene Beijevelt
Nurses Committee chair
The Netherlands

Susan Cutter
Psychosocial Committee chair
U.S.A.

Alfonso Iorio
WFH WBDR Steering Committee co-chair
Canada

Radoslaw F. Kaczmarek
Coagulation Product Safety, Supply, and Access (CPSSA) Committee chair
Poland

Michelle Lavin
von Willebrand Disease and Rare Bleeding Disorders Committee chair
Ireland

Lochana Nanayakkara
Dental Committee chair
U.K.

Gianluigi Pasta
Musculoskeletal Committee chair
Italy

Dawn Rotellini
Women with Inherited Bleeding Disorders Committee chair
U.S.A.

Jeff Stonebraker
Data and Demographics Committee chair
U.S.A.

Pierre Toulon
Laboratory Science Committee chair
France

For more information on the Medical Advisory Board, contact us at

Accreditation Committee: 2018 to 2020

The Accreditation Committee is responsible for reviewing applications made to the WFH by hemophilia organizations. The Committee decides which organizations should become associate or full national member organizations (NMOs).

Chair
Barry Flynn
Vice-president, finance
U.K.

Members

Saliou Diop
Medical board member
Regional advisor, Africa
Senegal

Magdy El Ekiaby
Medical board member
Regional advisor, Middle East
Egypt

Cesar Garrido
Lay board member
Regional advisor, Central America & Caribbean (CAC)
Venezuela

Cedric Hermans
Medical board member
Regional advisor, Europe (Central & Eastern – CEE) and Central Asia
Belgium

Carlos Safadi Márquez
Lay board member
Regional advisor, South America
Argentina

Glenn Pierce
Vice-president, medical
Regional advisor, North America
U.S.A.

Alain Weill
President
Regional advisor South Asia & East Asia
France

Deon York
Lay board member
Regional advisor, Southeast Asia & Western Pacific
New Zealand


For more information about the Accreditation Program, contact us at

Ethics Advisory Committee: 2018 to 2020

The Ethics Committee is a sub-committee of the Board of Directors that meets as needed to advise on perceived ethical issues. The committee maintains a two-way consultation process with the Board.

Chair
Carlos Safadi Márquez
Lay board member
Argentina


Members
Barbara Konkle
Medical board member
U.S.A.


Ex officio
Alain Baumann
WFH CEO
France

Alain Weill
President
France

 

Coagulation Product Safety, Supply, and Access Committee: 2020 to 2022

The WFH Coagulation Product Safety, Supply, and Access (CPSSA) Committee oversees all WFH activities related to safety and supply issues. It includes patients, clinicians, and regulators.

Chair
Radoslaw F. Kaczmarek
Poland

Members

Magdy El Ekiaby
Egypt

Dan Hart
U.K.

Cedric Hermans
Medical board member
Belgium

Anneliese Hilger
Germany

Craig Hooper
U.S.A.

Mike Makris
U.K.

Declan Noone
Ireland

Brian O'Mahony
Ireland

David Page
Canada

Flora Peyvandi
Italy

Steven Pipe
U.K.

Thomas Sannié
France

Uwe Schlenkrich
Germany

Mark Skinner
U.S.A.

Alok Srivastava
India

Ex officio

Glenn Pierce
Vice President, Medical
U.S.A.

Cesar Garrido
President
Venezuela

For more information on the CPSSA Committee, contact us at

Data and Demographics Committee: 2020 to 2022

The WFH Data and Demographics Committee oversees WFH activities related to the collection, management, and analysis of data collected through the Annual Global Survey. The Data and Demographics Committee includes data experts, clinicians, and patient leaders. The Committee is responsible for publishing the Report on the Annual Global Survey.

Chair
Jeff Stonebraker
U.S.A.

Committee members

Magdy El Ekiaby
Egypt

Emna Gouider
Tunisia

Alfonso Iorio
Canada

Mike Makris
U.K.

Jamie O’Hara
U.K.

Michael Recht
U.S.A.

Ex officio

Glenn Pierce
Vice President, Medical
U.S.A.

Cesar Garrido
President
Venezuela

Annual Global Survey reviewers

Paula Bolton-Maggs
U.K.

Randall Curtis
U.S.A.

Suely Rezende
Brazil

Mike Soucie
U.S.A.

Alok Srivastava
India

For more information on the Data and Demographics Committee, contact us at .

Dental Committee: 2020 to 2022

The aim of the Dental Committee is to raise awareness of the need for good oral healthcare in the hemophilia community and to develop strategies to deliver it to all affected patients.

Chair
Lochana Nanayakkara
U.K.

Vice-chair
Branislav Bajkina
Serbia

Secretary
Miryam Parreira
Argentina

Members

Zikra Alkhaval
Saudi Arabia

Irakli Chachua
Georgia

Laura Beatriz Isidro Olan
Mexico

Maria Elvira Pizzigath Correa
Brazil

Rebecca Schaffer
U.S.A.

Graeme Ting
New Zealand

Norjehan Yahaya
Malaysia

For more information on the WFH Dental Committee, contact Miryam Parreira at .

Humanitarian Aid Advisory Committee: 2018 to 2020

The Humanitarian Aid Advisory Committee is responsible for overseeing the WFH Humanitarian Aid Program. It determines strategy and overall policies and procedures. It provides a general oversight of products donated by different manufacturing companies and ensures effective donation and reporting mechanisms. The committee also ensures that the distribution of product donations follows the current WFH criteria for selection of recipient countries, taking into consideration WFH agreements with countries, where applicable.

Chair
Glenn Pierce
Vice-president, medical
U.S.A.


Members
Megan Adediran
Nigeria

Saliou Diop
Medical board member
Senegal

Amy Dunn
WFH USA board member
U.S.A.

Magdy El Ekiaby
Medical board member
Egypt

Radoslaw F. Kaczmarek
Poland

Barbara Konkle
Medical board member
U.S.A.

Mark Skinner
WFH USA board member
U.S.A.

Alain Weill
President
France


For more information on the Humanitarian Aid Committee, contact us at .

International External Quality Assessment Scheme Committee (IEQAS): 2018 to 2020

The International External Quality Assessment Scheme (IEQAS) is operated by the U.K’s National External Quality Assessment Scheme for Blood Coagulation, based in Sheffield, U.K.

Chair
Sukesh Nair
India

Members
Glenn Pierce
Vice-president, medical
U.S.A.

Scheme Director
Steven Kitchen
U.K.

Scheme Manager
Timothy Woods
U.K.

Scheme Deputy Manager
Ian Jennings
U.K.

Scheme Program Scientist
Dianne Kitchen
U.K.

Laboratory Science Committee Vice-chair
Pierre Toulon
France

For more information on the WFH IEQAS, contact us at .

International Hemophilia Training Centre Committee: 2018 to 2020

The aim of the International Hemophilia Training Centre (IHTC) Program is to give healthcare professionals from developing countries training in the diagnosis and management of hemophilia and other bleeding disorders.

Chair
Miguel Escobar
U.S.A.

Members
Glenn Pierce
Vice-president, medical
U.S.A.

IHTC Director
Daniela Neme
Argentina

IHTC Director
Johnny Mahlangu
South Africa

IHTC Director
Huyen Tran
Australia

Musculoskeletal Committee chair
Greig Blamey
Canada

Laboratory Science Committee chair
Steve Kitchen
U.K.

Nurses Committee chair
Kate Khair
U.K.

Dental Committee chair
Graeme Ting
New Zealand

For more information on the IHTC Program, contact us at .

Laboratory Science Committee: 2020 to 2022

The WFH Laboratory Science Committee raises awareness of standards in the diagnosis of hemophilia and other inherited bleeding disorders.

Chair
Pierre Toulon
France

Vice-chair
Silmara Montalvao
Brazil

Members

Annette Bowyer
U.K.

Carlos de Brasi
Argentina

Dong Chen
U.S.A.

Tulasi Geevar
India

Emna Gouider
Tunisia

Anastasia A. Khasiani
Kenya

Megan Sutherland
U.K.

For more information on the Laboratory Science Committee, contact us at .

Musculoskeletal Committee: 2018 to 2020

The role of the WFH Musculoskeletal Committee is to provide education, exchange treatment experiences, and promote research and training on the management of musculoskeletal complications in hemophilia. As well as attending scientific meetings, members of the group visit developing countries to assist, teach, and train colleagues, patients and their families.

Chair
Greig Blamey
Canada

Senior Vice-chair
Gianluigi Pasta
Italy

Junior Vice-chair
Cesar Haddad
Lebanon

Secretary
Antonio Gavrilovski
Macedonia

Member-at-Large
Rohini Dange
India

For further information on the WFH Musculoskeletal Committee, contact Antonio Gavrilovski, at .

Nurses Committee: 2020 to 2022

The vision of the WFH Nurses Committee is to improve the quality of care of patients with hemophilia and other bleeding disorders throughout the world. This is achieved by enhancing nursing practices and making nursing an integral part of a multidisciplinary healthcare team.

Chair
Marlene Beijevelt
The Netherlands

Vice-chair
Christine Guelcher
U.S.A.

Members

Khalid A. R. Al Habaybia
U.A.E.

Andrew Atkins
Australia

Anjalin D’Souza
India

Cathy Harrison
U.K.

Lori Laudenbach
Canada

Brian Ramsay
New Zealand

Marcella Sisdelli
Brazil

For more information on the WFH Nurses Committee, contact Marlene Beijlevelt, at .

Psychosocial Committee: 2020 to 2022

The objective of the WFH Psychosocial Committee is to improve the quality of care—and quality of life—of people with bleeding disorders. This is achieved by making psychosocial care an integral part of a multidisciplinary approach to healthcare.

Chair
Susan Cutter
U.S.A.

Vice-chair
Silvina Graña
Argentina

Secretary
Frederica Cassis
Brazil

Members

Patricia Cabré
Spain

Gaby Golan
Israel

Richa Mohan
India

Taheri Nourallah
Iran

Mohsena Olath-Carramtall
Mauritius

Loretta Riley
Australia

Diane Standish
U.S.A.

For more information on the WFH Psychosocial Committee, contact Frederica Cassis, at .

Centre Twinning: 2018 to 2020

The Centre Twinning Committee is responsible for reviewing the WFH Centre Twinning Program. The Centre Twinning Committee examines twinning partnerships between hemophilia treatment centres and includes medical members of the Board of Directors as well as other twinning representatives.

Chair
Jayson Stoffman
Canada


Members
Shasikant Apte
India

Yacouba Diallo
Mali

Dan Hart
U.K.

Margareth Ozelo
Brazil

Glenn Pierce
Vice-president, medical
U.S.A.

For more information on the Centre Twinning Committee, contact us .

Organization Twinning: 2018 to 2020

The Organization Twinning Committee is responsible for reviewing the WFH Organization Twinning Program and formulating recommendations. The Organization Twinning Committee examines twinning partnerships among hemophilia organizations and youth groups. The Committee includes lay members of the Board of Directors as well as other twinning representatives.

Chair
Deniece Chevannes
U.S.A.


Members
Nurul Islam
Bangladesh

Milena Pirnat
Canada

Yuri Zhulyov
Russia

For more information on the Organization Twinning Committee, contact us .

von Willebrand Disease and Rare Bleeding Disorders Committee: 2020 to 2022

The von Willebrand Disease and Rare Bleeding Disorders (VWD-RBD) Committee’s mandate is to develop and recommend activities for WFH programming to enhance access to treatment for von Willebrand disease (VWD), rare bleeding disorders, and inherited platelet disorders.

Chair
Michelle Lavin
Ireland

Members

Magdy El Ekiaby
Egypt

Augusto Federici
Italy

Paula James
Canada

Claudia Khayat
Lebanon

Flora Peyvandi
Italy

Jameela Sathar
Malaysia

Karin van Galen
The Netherlands

Baiba Ziemele
Board member
Latvia

For more information on the VWD-RBD Committee, contact us .

WFH World Bleeding Disorders Registry (WBDR) Steering Committee: 2020 to 2022

The WFH World Bleeding Disorders Registry (WBDR) Steering Committee oversees the development and implementation of the WBDR and activities related to the collection, management, and analysis of data collected through the WBDR.

Co-Chairs

Alfonso Iorio
Canada

Catherine Lambert
Belgium

Members

Saliou Diop
Medical board member
Senegal

Cedric Hermans
Medical board member
Belgium

Barbara Konkle
Medical board member
U.S.A.

Declan Noone
Ireland

Jamie O'Hara
U.K.

Ex officio

Glenn Pierce
Vice President, Medical
U.S.A.

Cesar Garrido
President
Venezuela

For more information on the WBDR, contact us at .

Women with Inherited Bleeding Disorders Committee: 2018 to 2020

The Women with Inherited Bleeding Disorders Committee is responsible for developing and recommending activities for WFH programming to enhance access to care and treatment for women with inherited bleeding disorders, including carriers of hemophilia.

Chair
Dawn Rotellini
Lay board member
U.S.A.


Members
Rezan Abdul-Kadir
U.K.

Susie Couper
Australia

Roshni Kulkarni
U.S.A.

Latifa Lamhene
Algeria

Anupama Pattiyeri
India

Baiba Ziemele
Latvia

 

Youth Committee: 2018 to 2020

The Youth Committee develops complimentary activities for the national member organization (NMO) Training Program and educational materials geared towards young leaders in the international bleeding disorders community. It provides advice on current and new youth-related activities for the WFH.

Chair
Michael van der Linde
The Netherlands


Members
Jodarsen P. Arnachellum
Mauritius

Ashrit B.K.
Nepal

Amanda Brito del Pino Mouro
Uruguay

Rana Mahmoud
Lebanon

Lauren Nyhan
New Zealand

Jorge Antonio Rodriguez Abrego
Panama

Nikole Scappe
U.S.A.

Deon York
Lay board member
New Zealand

For more information on the Youth Committee, contact us at .