WFH NETWORK

Data collection

Report on the WFH Annual Global Survey 2016

The Report on the WFH Annual Global Survey 2016 includes selected demographic and treatment-related data on people with hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world.

The 2016 Report includes data on more than 295,000 people with bleeding disorders in 113 countries. As in past years, the Global Survey Report provides analysis and results for a limited number of the survey questions asked each year. The full survey questionnaire is contained at the end of the report. The WFH thanks our national member organizations for their help in gathering this important data.

Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other research material. We encourage researchers to contact us at globalsurvey@wfh.org when they use WFH Annual Global Survey data.


Annual Global Survey Mini Report 1: Gender

 

The WFH Annual Global Survey (AGS) mini reports are advocacy tools that provide more in-depth perspective and context to AGS data. Lack of diagnosis and treatment for women and girls with bleeding disorders remains a challenge in our community. Highlighting gender data from the AGS can help bring awareness to the issues facing women and girls.

Click here to download >


Interactive Graphs of Annual Global Survey data

The WFH has developed a new data collection system, which includes: real time, automated validation, customizable queries and the output of raw data for analysis with various software solutions. This system has allowed us to continue to improve the quality and comprehensiveness of the data we collect each year.

To view and download graphs of Annual Global Survey data developed using our new data collection system, click here > 

For more information, contact globalsurvey@wfh.org


Quality Data Collection

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy. Click here to download >






Previous reports

WFH Annual Global Survey 2015
WFH Annual Global Survey 2014

WFH Annual Global Survey 2013

WFH Annual Global Survey 2012
WFH Annual Global Survey 2011 

For previous editions search “annual global survey” at www.wfh.org/publications


Updated November 2017