Data collection

The 2016 Global Survey data collection has officially begun!

We are now collecting data for the 2016 Global Survey. NMOs now have the option of submitting their data online in English, French, and Spanish. For any questions or comments regarding the 2016 Annual Global Survey, please email

Data submission April 26 to May 30
Submission deadline extended June 30
Data and Demographics Committee preliminary review August
Final validation of country data August 30
Publication of 2016 Report on the Annual Global Survey October

Annual Global Survey Mini Report 1: Gender


The WFH Annual Global Survey (AGS) mini reports are advocacy tools that provide more in-depth perspective and context to AGS data. Lack of diagnosis and treatment for women and girls with bleeding disorders remains a challenge in our community. Highlighting gender data from the AGS can help bring awareness to the issues facing women and girls.

Click here to download >

Report on the WFH Annual Global Survey 2015

The Report on the WFH Annual Global Survey 2015 includes selected demographic and treatment-related data on people with hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world.

The 2015 Report includes data on more than 304,000 people with bleeding disorders in 111 countries. As in past years, the Global Survey Report provides analysis and results for a limited number of the survey questions asked each year. The full survey questionnaire is contained at the end of the report. The WFH thanks our national member organizations for their help in gathering this important data.

The World Federation of Hemophilia (WFH) must be credited when Annual Global Survey data is used in presentations, publications or other research material. We encourage researchers to contact us at when they use Annual Global Survey data.

Interactive Graphs of Annual Global Survey data

The WFH has developed a new data collection system, which includes: real time, automated validation, customizable queries and the output of raw data for analysis with various software solutions. This system has allowed us to continue to improve the quality and comprehensiveness of the data we collect each year.

To view and download graphs of Annual Global Survey data developed using our new data collection system, click here > 

For more information, contact

Quality Data Collection

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy. Click here to download >

Previous reports

WFH Annual Global Survey 2014
WFH Annual Global Survey 2013

WFH Annual Global Survey 2012
WFH Annual Global Survey 2011 

For previous editions search “annual global survey” at

Updated June 2017