Segawa
Segawa was born with severe hemophilia A but never knew it. In fact, his brother and two uncles all died from complications related to hemophilia but none of them had even heard of the condition—let alone received a proper diagnosis.
A painful knee bleed at the age of 12 brought Segawa to a rehabilitation care unit for children with bone disabilities. He was misdiagnosed with a bone disease and doctors proceeded to perform orthopedic surgery on his knee without any clotting factor concentrates. Luckily, he survived the surgery, but his condition only worsened.
Fearing the worst, the rehabilitation centre transferred Segawa to Mulago Hospital in Kampala, where he was tested and finally received the proper diagnosis of severe hemophilia A.
With the support of the WFH, the Ugandan Haemophilia Foundation provided Segawa the factor concentrates he needed to survive. However, Segawa and his family struggle to pay to travel from his rural village to the city where the treatment is available.
The situation in Uganda is challenging—but improving. With your support the WFH can help provide proper training and treatment where before there was none. Read more >