The World Federation of Hemophilia (WFH) is committed to bringing the bleeding disorders community together in the name of Treatment for All. This commitment is especially important during the COVID-19 crisis. The WFH deeply believes that where you live should not determine your access to care and treatment for an inherited bleeding disorder.

Our Vision and Mission

Our vision of Treatment for All is that one day, all people with a bleeding disorder will enjoy a more certain future filled with promise, no matter where they live. The mission of the WFH is to improve and sustain care for people with inherited bleeding disorders around the world. In order to achieve this, we actively pursue long-term relationships with individuals and organizations who share the values inherent in our comprehensive development model.

We work to ensure every person⁠—including those living with hemophilia and von Willebrand disease (VWD), those with rare factor deficiencies, and women with bleeding disorders⁠—have access to world-class care and recognition of their condition. Our corporate partners, donors, and volunteers all share this belief and we thank them for their past and ongoing contributions.

News

Hemophilia World Online is a trusted news source for everything related to inherited bleeding disorders.

Learn about important developments that impact the bleeding disorders community.

This section of the WFH website is for manufacturers to post press releases of interest to the global bleeding disorders community. Information posted does not represent an endorsement of a particular product by the WFH. Statements and opinions expressed here do not necessarily represent the opinions, policies, or recommendations of the WFH.

Our Work

WFH Humanitarian Aid Program

The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Founding Visionary Contributors; Bayer, our Visionary Contributor; Grifols and Roche, our Leadership Contributors; and our Contributor, CSL Behring. Learn more >

Our Programs

The WFH's Global Training Programs serve and support the needs of its national member organizations (NMOs) and the development of hemophilia treatment centers to achieve sustainable comprehensive care and treatment for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies and inherited platelet disorders.

The healthcare development work of the WFH is carried out in collaboration with its national member organizations (NMOs) and a dedicated group of medical and lay volunteers. It is based on a comprehensive development model that aims to achieve sustainable comprehensive care and Treatment for All. The WFH carries out its work through Regional & National Programs and activities.

Research & Data Collection

The WFH Research and Public Policy department works to enhance both data collection and research activities around the world with the aim of creating better evidence to improve the clinical management of patients with bleeding disorders around the world.

WFH data collection programs include the WFH Annual Global Survey, the WFH World Bleeding Disorders Registry (WBDR), and the WBDR Research Support Program. Learn more >

Treatment Safety, Supply and Access

The safety and supply of treatment products is a key concern for the bleeding disorders community.

Since the 1970's and 1980's, when many people in our community were infected with human immunodeficiency virus (HIV) and hepatitis C (HCV) through the use of clotting factor concentrates, WFH has made it a priority to closely monitor product safety, supply, and access. The WFH issues advisories related to treatment safety and supply. We also monitor the development and regulatory status of new and novel treatments. Learn more >

Educational Materials

One stop for easy access to all inherited bleeding disorders resources.

The WFH eLearning Platform is your one stop for easy access to all educational materials. You will find everything you need on hemophilia and other inherited bleeding disorders, from a quick introduction to in-depth guides and articles. Learn more >

 
 
WFH Corporate Partner Program
Visionary Partners
WFH Corporate Partner Program
Leadership Partners
WFH Corporate Partner Program
Collaborating Partners


WFH Corporate Partner Program
Community Partners