Twinning Program

The Twinning Program creates short-term collaborative partnerships between medical professionals as well as patient and youth leaders in developing and developed countries for a period of two to four years. Hemophilia treatment centres, patient organizations and youth groups can participate in this program, helping improve treatment and care for people living with an inherited bleeding disorder in developing countries.

The goal is that twinned hemophilia treatment centres, patient organizations, and youth groups work together and share information. The result is a mutually beneficial partnership that transfers knowledge, expertise, experience, skills, and resources.

Over the lifespan of the program, twins have completed 1,034 total years of twinning partnerships, which have:

  • Improved diagnosis and treatment over time
  • Enriched the knowledge of healthcare professionals caring for patients with bleeding disorders
  • Enhanced outreach initiatives
  • Facilitated resource sharing
  • Increased government support for bleeding disorders through advocacy initiatives
  • Strengthened patient organizations through capability building

Types of Twinnings

The WFH has three types of Twinnings: Hemophilia Treatment Centre Twinnings, Hemophilia Organization Twinnings, and Youth Group Twinnings (launched in 2018).

The Hemophilia Treatment Centre (HTC) Twinnings partner emerging HTCs with established ones for a maximum of four years to help improve diagnosis and provide care and treatment for people with hemophilia and other inherited bleeding disorders.

The Hemophilia Organization Twinnings (HOT) partner emerging and established hemophilia patient groups for a maximum of four years to share knowledge and skills in areas such as patient education, outreach, fundraising, and all other aspects of operating a successful hemophilia patient organization.

Launched in 2017, the Youth Group Twinnings partner youth groups from around the world in formal, two-year partnerships with the goal of helping to improve and strengthen the youth group in the developing partner country. With this expansion of the Twinning Program, the WFH helps foster the next generation of leaders in the bleeding disorders community and ensures that they are well prepared to take on a leadership role.

Current Twins

TOTAL ACTIVE TWINS:
Hemophilia Treatment Centre (HTC) Twins: 24
Youth Group Twins: 4

Hemophilia Organization Twins (HOT): 14

Hemophilia Treatment Centre (HTC) Twins

2016 – Addis Ababa (Ethiopia) – Detroit (USA)
2016 – Enugu (Nigeria) – Philadelphia (USA)
2017 – Harare (Zimbabwe) – Chapel Hill (USA)
2018 – Antananarivo (Madagascar) – Clermont-Ferrand (France)
2018 – Ouagadougou (Burkina Faso) – Saint Etienne (France)
2018 – Rose Belle (Mauritius) – Johannesburg (South Africa)
2019 – Addis Ababa (Ethiopia) – Minneapolis (USA)
2019 – Maputo (Mozambique) – San Diego (USA)

Hemophilia Organization Twins (HOT)

2017 – Mali – Algeria
2018 – Burkina Faso – France
2018 – Kenya – Scotland
2018 – Madagascar – Brittany (France)
2018 – Ethiopia – Oregon (USA)



Application and WFH Support

The following provides a brief overview of the general process and lifespan of a twinning partnership:

  1. Contact the WFH and complete a background questionnaire, which will help the WFH identify the best potential partner for your hemophilia treatment centre, organization or youth group.
  2. After your potential twinning partner has been identified by the WFH, an assessment visit needs to be planned and conducted.
    The assessment visit is typically a three to four (two to four days for youth group twinning) day visit to the developing country partner. Two team members from the developed hemophilia treatment centre, patient organization, or youth group travel to the developing country along with a WFH staff member or experienced WFH volunteer (whenever possible).
    • This is an opportunity for the potential partners to meet with each other, learn more about the current situation in the developing country, and discuss the ways a twinning partnership could help improve care in that country
    • At the end of the assessment visit, if both partners mutually agree that a twinning partnership would be beneficial, the partners apply together to join the program
  3. Twinning partners plan educational and outreach activities over a four-year period (two years for youth group twinning). Twinning partners complete annual reports and action plans for annual funding.
  4. At the end of the twinning period, twinning partners complete a closure questionnaire.

The WFH provides support to the twinning partners (treatment centres, organizations, and youth groups) during the lifespan of their partnership by:

  • Assisting interested applicants in finding a twinning partner
  • Financially supporting the partnerships through annual project funding and funds for assessment visits
  • Providing individual guidance and coaching to twinning partnerships through WFH regional managers
  • Facilitating the sharing of experiences between twinning partnerships, including twinning meetings
  • Supplying WFH educational resources and manuals that are instrumental to twinning activities
  • Providing a step-by-step guide to twinning
  • Provide a letter of support to facilitate travel of twins

For more information on the WFH Twinning Program, contact the WFH at twinning@wfh.org.


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