Global NMO Training (GNMOT): This three-day training, held every two years before the WFH World Congress for WFH NMOs, includes capacity-building sessions for patient organizations in both developed and developing countries. Youth issues, succession planning, and leadership are among the essential components of this training. Click here for more details.
World Congress Session: A youth session is organized on the first day of the World Congress to engage and empower youth and to discuss issues that matter to them. This two and a half-hour session is open to all Congress attendees and gives them an opportunity to network and get to know young leaders in the global bleeding disorders community. The objectives of this session include the following:
- Sharing personal and patient organization experiences on the theme of "Youth Collaboration". Young people with bleeding disorders will learn from the experiences of their peers around the world, and will have the chance to share their own thoughts and ideas about the importance of collaboration with the organizations they work with
- Learning about the WFH Youth Leadership Program and how to navigate Congress
- Meeting recipients of the Youth Fellowship Program
Youth leadership development workshops: Youth leadership development workshops bring youth leaders together from different areas of the world to learn more about leadership, organizational development and the importance of youth involvement in their respective communities and patient organizations. They also help participants identify the issues and challenges affecting future leaders. Youth leaders with bleeding disorders (male and female) are selected from WFH NMOs to participate in these workshops.
These interactive skills training workshops consist of a mix of presentations focused on specific priority topics adapted to the needs and realities of invited participants, experience exchanges, discussions on challenges, opportunities, and best practices. Popular education techniques such as role play and practical exercises are used for interactive learning. The objectives of these two-day workshops are to:
- Explore practical tools for developing the innovative spirit of youth and enabling them to build support for the patient organizatioin
- Help youth leaders understand the importance of their contribution and commitment to their community and patient organization
- Acquire the knowledge, ability, and skills required to design, plan, fulfil projects, develop strategies, and lead effectively
- Share tips to empower, support, mentor, and train other youth
To date, five youth workshops have been organized and were attended by 92 participants from 67 countries. The sixth youth workshop will be held in Montreal in September 2019, and a seventh one is being planned for November 2019.