Global Alliance for Progress Program
The Global Alliance for Progress (GAP) Program's primary goal is to greatly increase the diagnosis and treatment of people with hemophilia and other bleeding disorders. It was launched on World Hemophilia Day April 2003.
The program aims to close the gap in treatment between developed and developing countries in three key areas:
- The number of people born with hemophilia and the number that reach adulthood;
- The estimated and actual number of known people with bleeding disorders;
- The need versus the availability of treatment products.
As part of its 50th anniversary, in 2013, the WFH initiated the second decade of the GAP Program to actively continue to work on closing the gap in care for people with bleeding disorders in 20 new target countries. The focus is on improving diagnosis for all bleeding disorders, improving treatment in the world’s poorest regions, and building on our achievements. The overarching goals for the second decade (2013 to 2022) of GAP will be to:
- Increase by 50,000 the worldwide number of people identified or diagnosed with a bleeding disorder
- Ensure that 50 per cent of those newly diagnosed are from the world’s most impoverished countries
This will allow for a more concerted effort to enhance diagnosis and access to treatment for under-recognized populations, which include people with inhibitors, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders, particularly women with these disorders and carriers.
The GAP Program will also use an enhanced and adapted comprehensive development model developed during the first decade and used by the WFH in all of its national healthcare development programs. The WFH model is designed to work with the healthcare system, government, and social infrastructure of the recipient country, to maximize the use of existing resources and to achieve long-term sustainable development of care and treatment of hemophilia and other bleeding disorders.
All areas of the WFH Development Model are included in the WFH GAP Program. This year, the WFH is focusing on the following 14 ongoing GAP Programs:
REGION |
COUNTRY |
OBJECTIVES |
South America |
Uruguay
|
- Medical expertise
- Government support
- Care delivery
- Patient organization
|
Colombia
|
- Government support
- Patient organization
- Care delivery
- Medical expertise
|
Middle East
|
Tunisia
|
- Government support
- Medical expertise
|
Egypt
|
- Government support
- Medical expertise
|
Jordan
|
- Government support
- Medical expertise
- Care delivery
|
Lebanon
|
- Government support
- Medical expertise
|
South Asia and East Asia |
China
|
- Medical expertise
- Patient organization
|
Sri Lanka
|
- Medical expertise
- Care delivery
|
Southeast Asia and Western Pacific
|
Indonesia
|
- Medical expertise
- Patient organization
- Data collection
|
Malaysia
|
- Medical expertise
- Patient organization
|
Vietnam
|
- Medical expertise
- Patient organization
- Care delivery
|
Europe |
Kyrgyzstan
|
- Government support
- Medical expertise
- Patient organization
- Care delivery
|
Ukraine
|
- Medical expertise
- Patient organization
|
Uzbekistan
|
- Government support
- Medical expertise
- Patient organization
- Care delivery
|
GAP Program statistics to date (Apr 2003 to Dec. 2018)
1. |
17,853 patients, family members, and national member organization (NMO) board members received training |
2. |
26,777 hemophilia treatment centres/healthcare professionals received training |
3. |
25 national care programs were established (23 with official commitments or memorandums of understanding) |
4. |
6.185 billion IUs cumulative increase in product supply |
For more information about the GAP Program, contact us at [email protected].
The GAP Program is supported by funding from: