NMO Accreditation Program

National member organizations (NMOs) of the WFH are national hemophilia organizations that represent the interests of people with hemophilia and other inherited bleeding disorders in their country.

They are generally organizations consisting primarily of people with hemophilia and other inherited bleeding disorders and their families. The organizations are self-governed, guided by a constitution, and in many cases, registered by the government of their country.

The Accreditation Program is the official vehicle by which newly established hemophilia patient associations are guided through the process of becoming NMOs of the WFH. In order to be accredited by the WFH, the patient association must represent the best interests of the majority of people with hemophilia and other inherited bleeding disorders and their families in a country. Only one patient association may represent a country as an NMO of the WFH.

The Accreditation Program also oversees the status of NMOs, making sure that the goals and aims of the organizations are not in conflict with those of the WFH.

Benefits and Duties

Full and associate NMO benefits include:

  • Access to publications, statistics, fact sheets, and safety and supply updates
  • Participation in WFH Congresses
  • Participation in NMO skills training workshops
  • General access to WFH healthcare programs (Global Alliance for Progress (GAP) programs, Country Programs, the Cornerstone Initiative, International Hemophilia Treatment Centre (IHTC) fellowships, centre and youth twinning partnerships, multidisciplinary workshops, and humanitarian aid donations)
  • The right to vote at the Annual Meeting of the General Assembly (full NMOs) or the right to be an observer during the Annual Meeting of the General Assembly (full and associate NMOs)

For more information about the Accreditation Program, contact us at regionaldevelopment@wfh.org.