Annual Global Survey

The Report on the WFH Annual Global Survey includes selected demographic and treatment-related data on people with hemophilia, von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders throughout the world.

The 2018 Global Survey data collection has officially begun!

We are now collecting data for the 20th anniversary of the Global Survey. For any questions or comments regarding the 2018 Annual Global Survey, please email globalsurvey@wfh.org.

IMPORTANT DATES
Data submission deadline April 30, 2019
Data and Demographics Committee preliminary review August 2019
Final validation of country data August 30, 2019
Publication of the 20th edition of Report on the Annual Global Survey October 2019

Annual Global Survey 2017

The 2017 Report includes data on more than 315,000 people with bleeding disorders in 116 countries. As in past years, the Global Survey Report provides analysis and results for a limited number of survey questions asked each year. The full survey questionnaire is contained at the end of the report. The WFH thanks our national member organizations (NMOs) for their help in gathering this important data.

Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other research material. We encourage researchers to contact us at globalsurvey@wfh.org when they use WFH Annual Global Survey data.

The WFH Annual Global Survey mini reports are advocacy tools that provide more in-depth perspective and context to Annual Global Survey data.

The WFH has developed real time, interactive and informative visualizations to summarize the Annual Global Survey data. This system has allowed for easier and faster analysis and report creation.

View and download graphs of Annual Global Survey data using our new system.

For more information, contact globalsurvey@wfh.org

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.