Annual Global Survey

The Report on the WFH Annual Global Survey includes selected demographic and treatment-related data on people with hemophilia, von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders throughout the world.

The Report on the WFH Annual Global Survey 2020 is now published!

Report on the WFH Annual Global Survey 2020

In the report on the Annual Global Survey 2020, there were a total of 120 data respondents who provided demographic and treatment information on people with bleeding disorders (PWBD). This report illustrates that globally over time, there have been over 393,000 PWBD identified and reported. Furthermore, new tables have been added to show the number of patients being treated with FVIIIa and FEIBA, as well as products used to treat VWD. The WFH is appreciative of all the efforts our national member organizations (NMOs) made in gathering this important data..

Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other research material. We encourage researchers to contact us when they use WFH Annual Global Survey data. Any questions or comments related to the survey can be addressed to [email protected].

The WFH Annual Global Survey mini reports are advocacy tools that provide more in-depth perspective and context to Annual Global Survey data.

The WFH has developed real time, interactive and informative visualizations to summarize the Annual Global Survey data. This system has allowed for easier and faster analysis and report creation.

View and download graphs of Annual Global Survey data using our new system.

For more information, contact [email protected]

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.