Annual Global Survey

The Report on the WFH Annual Global Survey includes selected demographic and treatment-related data on people with hemophilia, von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders throughout the world.

Data Collection

Report on the WFH Annual Global Survey 2019

The Report on the Annual Global Survey 2019 is now published and available online.

Despite the COVID-19 pandemic proposing many data collection challenges for our national member organizations (NMOs), a total of 115 countries responded to the questionnaire this year. The report includes data on over 324,000 people with bleeding disorders, provides information on patients with bleeding disorders, and shows the progress of hemophilia care using demographic and treatment information. Furthermore, the report uses the new hemophilia prevalence estimates to illustrate the inequities in patient diagnosis globally. The WFH is appreciative of all the efforts of our national member organizations (NMOs) in gathering the important data used for the WFH Annual Global Survey 2019.

Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other research material. We encourage researchers to contact us at when they use WFH Annual Global Survey data.

For any questions or comments regarding the Annual Global Survey, please email .

The WFH Annual Global Survey mini reports are advocacy tools that provide more in-depth perspective and context to Annual Global Survey data.

Mini Report 1: Gender

Mini Report 2: Age

The WFH has developed real time, interactive and informative visualizations to summarize the Annual Global Survey data. This system has allowed for easier and faster analysis and report creation.

View and download graphs of Annual Global Survey data using our new system.

For more information, contact . 

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.

 

For previous editions search "annual global survey" at elearning.wfh.org/find-a-resource/.