Annual Global Survey

The Report on the WFH Annual Global Survey includes selected demographic and treatment-related data on people with hemophilia, von Willebrand disease (VWD), rare factor deficiencies, and inherited platelet disorders throughout the world.

Data Collection

The 2019 Global Survey data collection has officially begun!

We are now collecting data for 2019 Global Survey. For any questions or comments regarding the 2018 Annual Global Survey, please email .

IMPORTANT DATES
Data submission deadline April 30
Data and Demographics Committee preliminary review July
Final validation of country data July 30
Publication of the Report on the Annual Global Survey October

 

Report on the WFH Annual Global Survey 2018

A total of 125 countries responded to the questionnaire this year—the highest ever in 20 years. The report includes data on over 337,000 people with bleeding disorders. The 20th anniversary report provides information on patients with bleeding disorders and shows the progress on hemophilia care using demographic and treatment information over time.  The WFH is proud to be celebrating the 20th anniversary of the Annual Global Survey and thanks our national member organizations (NMOs) for their continuous help and support in gathering this important data..

Please credit the WFH when Annual Global Survey data are used in presentations, publications, or other research material. We encourage researchers to contact us at when they use WFH Annual Global Survey data.

The WFH Annual Global Survey mini reports are advocacy tools that provide more in-depth perspective and context to Annual Global Survey data.

Mini Report 1: Gender

Mini Report 2: Age

The WFH has developed real time, interactive and informative visualizations to summarize the Annual Global Survey data. This system has allowed for easier and faster analysis and report creation.

View and download graphs of Annual Global Survey data using our new system.

For more information, contact . 

Quality data are extremely useful in advocating for better care for people with bleeding disorders. This Fact Sheet introduces the rationale for data collection, the criteria for quality data, the keys for successful quality data collection, and examples of how quality data collection can provide the foundation of effective advocacy.

 

For previous editions search "annual global survey" at elearning.wfh.org/find-a-resource/.