Peer-reviewed publications on global data and patient registries relevant to hemophilia and other bleeding disorders are also available.
Iorio, A., Stonebraker, J. S., Brooker, M., Soucie, J. M. and the Data and Demographics Committee of the World Federation of Hemophilia (2017), measuring the quality of haemophilia care across different settings: a set of performance indicators derived from demographics data. Haemophilia, 23: e1–e7. doi:10.1111/hae.13127.
Coffin D, Herr C, O'Hara J, Diop S, Hollingsworth R, Srivastava A, Lillicrap D, van den Berg HM, Iorio A, Pierce GF. World bleeding disorders registry: The pilot study. Haemophilia. 2018 Feb;e113-e116.