WFH NETWORK

Twinning Program: Guidelines and Resources

Guidelines

Twinning step-by-step

The following provides a brief overview of the general process and lifespan of a Twinning partnership:

  • Get the support of your hemophilia treatment centre (HTC) or your national member organization (NMO)
  • Contact the World Federation of Hemophilia (WFH)
  • Fill out a questionnaire
  • Find a match
  • Conduct an assessment visit
  • Submit an application
  • Await the approval of the Hemophilia Treatment Centre or Hemophilia Organization Twinning Committee
  • Plan educational and outreach activities over a four-year period. Complete annual reports and applications for further funding
  • Complete closure questionnaire

Benefits of Twinning

There are many possible benefits to a Twinning partnership:

  • Builds capacity through the transfer of skills and knowledge, leading to more capable organizations that are able to provide improved hemophilia services.
  • Allows the sharing of best practices that have been used by others and that have proven effective.
  • Encourages collaboration; builds strong relationships among hemophilia organizations or hemophilia treatment centres.
  • Energizes and offers new challenges to established hemophilia organizations or treatment centres.
  • Promotes solidarity and a feeling of belonging to a larger community.
  • Builds a successful global hemophilia network that includes everyone.

WFH support

  • The WFH provides support throughout the twinning partnership by:
  • Assisting organizations or treatment centres in finding a twinning partnership.
  • Financially supporting the partnerships through project grants and funding for assessment visits.
  • Supplying WFH publications and manuals that are instrumental to twinning activities.
  • Facilitating the sharing of experiences between twinning partnerships, including twinning meetings.
  • Providing individual guidance and coaching to twinning partnerships through WFH regional program managers, who may conduct close monitoring and accompany twinning partners on assessment visits.
  • Providing a step-by-step guide to twinning.

Resources

Improving care beyond our borders: a Twinning guide for hemophilia treatment centres

This publication outlines the WFH’s Twinning Program for treatment centres, providing helpful information for current twins, as well as those thinking of becoming involved in twinning. It includes information on the benefits of twinning, WFH support provided to twins, and how to go about becoming a twin. It also includes many ideas about possible activities and steps for improving diagnosis and care. PDF

Reaching beyond our borders: a Twinning guide for hemophilia organizations

This guide is designed to help organizations that are considering twinning as well as those who have just started a twinning partnership. It includes information on the benefits of twinning, WFH support provided to twins, and how to go about becoming a twin. It also includes many ideas about possible activities and steps for twinning success. PDF


Updated May 2012

 

The Twinning program is supported by exclusive funding from: