WFH NETWORK

von Willebrand disease

Resources

What Is von Willebrand Disease?
This patient handbook contains basic information about the inheritance, diagnosis, symptoms and management of von Willebrand disease.

von Willebrand Disease: An Introduction for the Primary Care Physician 
The diagnosis of VWD is complex. However, the primary care physician can and should play a role in recognizing the signs and symptoms of VWD and in referring patients for proper management.

Reproductive Health in Women with Bleeding Disorders
A review of the common obstetric and gynecological challenges in women with bleeding disorders and guidelines for their management.


Search the WFH’s publications library for more resources in English, Spanish, French, Russian, Chinese, and Arabic. 


 

The Many Faces of Bleeding Disorders

This video podcast celebrates the whole bleeding disorders community – people with hemophilia and symptomatic carriers, females and males with von Willebrand disease, as well as those with rarer factor deficiencies, and inherited platelet disorders. More videos

Haemophilia, published by Wiley-Blackwell, is the official journal of the World Federation of Hemophilia.

The WFH’s von Willebrand Disease and Rare Bleeding Disorders (VWD/RBD) Committee was formed in 2006. Its mandate is to develop and recommend activities for WFH programming to enhance access to treatment for von Willebrand disease, rare bleeding disorders, and inherited platelet disorders. Contact the VWD/RBD committee.

Local hemophilia organizations and treatment centres can provide additional information and support. Search our online directory to find the group nearest you.


Other resources


Updated June 2016