WFH Youth Leadership Program

The WFH is expanding its youth programs to help foster the next generation of leaders in the bleeding disorders community and ensure that they are well prepared to take over a leadership role.

The WFH youth leadership program includes fellowships/ scholarships, leadership skills training, and resources for young people.

Fellowships and scholarships

WFH Youth Fellowship program: The WFH offers fellowships to youth involved in national member organizations to attend the WFH Global NMO Training workshops, WFH World Congress, and General Assembly.

Susan Skinner Memorial Fund (SSMF) scholarship: Two scholarships per year are awarded to young women with bleeding disorders to attend the WFH World Congress or other WFH event. Click here for more details >

  • 2016 Youth Fellows
  • 2014 Youth Fellows
  • SSMF scholarship recipients

The WFH is pleased to announce that 21 young leaders from around the world have been selected to receive Youth Fellowships in 2016 and attend the following events in Orlando: Global NMO Training (July 21-23) WFH World Congress (July 24-28) and General Assembly (July 29).


All NMOs were invited to submit a candidate for the fellowship and the NMO Capacity Building Committee scored the applications based on merit. Thanks to donations made by WFH staff , two additional fellowships were awarded in 2016. Furthermore, four female fellows have the distinct honor of being named recipients of the Susan Skinner Memorial Fund Scholarship.


The 2016 WFH Youth Fellows are:


  • Saeed Abdul Khalek (Lebanon)
  • Yousif Abu Abdo (Palestine)
  • Faizan Baig (Pakistan)
  • Michelle Cecil (USA) – Susan Skinner Memorial Fund Scholarship
  • Rodrigo Nahuel Dominguez (Argentina)
  • Jared Formalejo (Philippines)
  • Yuya Hayakawa (Japan)
  • Bharat Khadka (Nepal)
  • Firaoli Ayele Kumbi (Ethiopia)
  • Elysee Jean-Luc Legrand (Mauritius)
  • Yikuan Liu (China)
  • Meilín Melián Bacallao (Cuba)
  • Ahmad Hazri Mohamed Aris (Malaysia)
  • Joelle Palmatier (USA) - Susan Skinner Memorial Fund Scholarship
  • Claudia Teresa Pena Villena (Peru) - Susan Skinner Memorial Fund Scholarship
  • Stefan Radovanovic (Serbia)
  • Ivan Sebest (Slovak Republic)
  • Mohamed Soliman (Egypt)
  • Ashley Taylor-Fowlie (New Zealand) - Susan Skinner Memorial Fund Scholarship
  • Luis Ramon Ureña Correa (Dominican Republic)
  • Vishal Venkatesh (India)
Congratulations to all who have been selected! We hope you enjoy your time in Orlando.

Eighteen young people from around the world received Youth Fellowships in 2014.


Thanks to donations made by WFH staff to the Close the Gap Campaign, two additional fellowships were awarded and 2014 had the highest number of youth fellows. Furthermore, two female fellows had the distinct honor of being named recipients of the Susan Skinner Memorial Fund Scholarship.


The 2014 WFH Youth Fellows are:


  • Abdel-Aziz Al-Sharif (Jordan)
  • Raul Arita Axume (Honduras)
  • Pablo Ardiles (Argentina)
  • Mohamed Bdioui (Tunisia)
  • Run Chanthearithy (Cambodia)
  • Leslie Situ Ferber (USA) – American Susan Skinner Memorial Fund Scholarship Winner
  • Mohamed Zulhilmi Paiz Ismadi (Malaysia)
  • Miguel Izquierdo Zarco (Mexico)
  • Salma Kiran (Pakistan) – International Susan Skinner Memorial Fund Scholarship Winner
  • Carlos Gabriel Maldonado Méndez (Guatemala)
  • Luis Manuel Melgar Arauz (Panama)
  • Megi Neziri (Albania)
  • Manuel Santiago Ordoñez Bastidas (Colombia)
  • John Francis Sarmenta (Philippines)
  • Dominic James Seye (Tanzania)
  • Courtney Jane Stevens (New Zealand)
  • Erdenelbugan Tsogbadrakh (Mongolia)
  • Kyelle Virgil (Trinidad & Tobago)
  • Hong Fung (Mark) Yu (Hong Kong)
Congratulations to all that participated! We hope you returned home to your national organizations inspired and energized to contribute to the global bleeding disorders community.

Leadership skills training

Advocacy in Action workshops: The WFH holds inter-regional workshops to help NMO leaders improve advocacy efforts by sharing tools and techniques, and focusing on specific challenges. Youth from participating countries are included to promote leadership and succession planning. Advocacy in Action workshops >

Global NMO Training workshops: These three-day workshops, held every two years before the WFH World Congress for national member organizations of the WFH, include capacity-building sessions for patient organizations in both developed and developing countries. Youth issues, succession planning, and leadership are among the essential components of this program.  Global NMO Training workshops >

Youth Leadership Development workshops: The Youth Leadership Development workshops bring youth leaders together to learn more about leadership, management and the importance of youth involvement within their respective communities and patient organizations, as well as to identify the range of issues and challenges affecting future leaders. Youth leaders with bleeding disorders are selected from WFH national member organizations to participate in these workshops.

These interactive skills training workshops consist of a mix of lectures focused on specific priority topics adapted to the needs and realities of invited participants, sharing experiences, challenges and best practices, role play and practical exercises. The objective of these two-day workshops is to:

  • Help youth leaders understand the importance of their contribution and commitment to their community and patient organization.
  • Explore practical tools for developing the innovative spirit of youth and enabling them to build support for the patient organization.
  • Share tips to empower, support, mentor, and train other youth.
  • Acquire knowledge, abilities and skills required to design, plan and carry out projects, strategy, and to lead effectively.
  • Youth Leadership workshop - Barcelona, Spain, Dec. 2016

    Program at a glance

    The WFH organized a two-day Youth Leadership Development Workshop, which served as a follow-up to the WFH Global NMO Training and the WFH 2016 World Congress both held in Orlando, in July 2016. This second WFH Youth Leadership Workshop took place in Barcelona, Spain, from December 2 - 3, 2016, attracting 22 participants from 21 countries and virtually linking a hundred more through a Facebook Live event.

    The workshop allowed participants to gain useful insight about what is youth engagement, the challenges and cycle of youth engagement, what social media tools are used by youth groups, moving their youth group forward, WFH resources for youth, and the opportunity to provide input on the future of the WFH Youth Leadership Program.

    The workshop began with presentations and sharing of experiences from youth delegates from four (4) National Member Organizations (NMOs) (Canada, India, Peru and Serbia) who shared on what their experiences were like in their countries; outlining the ups and downs of their youth groups while discussing ways in which youth improvements can be made.

    One of the major highlights of the Youth Leadership Development Workshop was the social media training sessions which also featured role playing and practical exercises:

    • Social media training: Introduction and overview ̶ Overview of the different programs, and the social-media related training goals of the workshop;
    • Discussion: What social media tools youth groups are using ̶ Moderated discussion of participants on what social media tools their youth groups (and NMOs) are using for internal and external communications;
    • Social media training: Communicating brand voice and consistency ̶ Presentation on brand voice (what is it?), communicating your brand voice, and image and reputation management;
    • Social media training: Case Studies  ̶ “the good, bad and the ugly” responses to social media posts by organizations;
    • Group work: Responding on social media ̶ Follow-up to the case studies, with participants working in small groups to formulate their own responses to social media posts;
    • Social media training: Privacy and Power ̶ Moderated discussion of participants on their goals, dreams and next steps for their youth groups. For those just beginning a youth group, how can they maintain momentum and start to play an active role in their NMOs? For those with an established youth group, how can they continue to grow and meet the needs of their community? What role can the WFH play in this?

    The social media training session was broadcasted live via WFH’s Facebook page with impressive participation from youth leaders from around the world. The participants also filmed themselves in a “mannequin challenge” to gain publicity for the Facebook Live event. This event received over 2,300 views.



Articles and publications

Thoughts from the December 2016 Youth Workshop: Alex Parkinson (Feb. 2017)

Youth Issues — Preparing for Life as an Adult with Hemophilia (Dec. 2010)
As young boys with hemophilia grow up, not only do they experience the usual emotional and physical challenges of adolescence and early adulthood, but their relationships with family and caregivers also change when taking on more direct responsibility for their bleeding disorder.

Search the WFH publications library for more great resources. The WFH has published over 300 titles in six languages. More

Young Voices is a series of articles designed to help identify, mobilize, and empower future leaders to participate in the global conversation and effect positive change in their communities. All 14 articles are now available in one pdf! Download the whole collection and start a conversation with young people in your community. Wondering whether youth can really make a difference? In two Young Voices videos, Jenna Lovell (Australia) and Premroop Alva (India) tell the inspiring success stories of their youth groups.

Online resources 

   Become a fan of the WFH Facebook page and connect with youth from around the world.

   Follow the WFH on Twitter.

   Check out our YouTube channel and watch the WFH’s latest videos.

The WFH has developed an extensive library of videos. “Our Lives with Hemophilia: The Stories of Vaibhav and Paul,” launching in July 2010, highlights the lives of two young men with hemophilia, one from a developed country and one from a developing country. More

HemoAction Games available online – play, share, learn!

Youth can learn about hemophilia in the language they know best: Play! By encouraging them to embark on their very own "hemophilia adventure", the games teach players how to prevent bleeds and manage hemophilia while learning about the clotting process, types of bleeds, factor infusions, and suitable physical activities. The focus, however, is on fun.

Updated March 2017