WFH NETWORK

Thai National Health Security Office awards top marks to National Hemophilia Care Program

Key findings from Thailand’s hemophilia outcomes study include fewer hospital admissions, reduced hospitalization, and greatly improved quality of life.

The signing of the memorandum of understanding on national hemophilia care in 2006. Left to right: Prof. Rajata Rajatanavin, Dr. Prat Boonyawong-virot, Dr. Sanguan Nitayarumphong, and Dr. Thip Sriphaisal

Following a comprehensive assessment of both the clinical and quality of life outcomes related to the National Hemophilia Care Program in Thailand, the National Health Security Office (NHSO) has renewed its commitment and announced increased funding for factor concentrates for people with hemophilia. The National Hemophilia Care Program was born out of Thailand’s involvement in the World Federation of Hemophilia’s Global Alliance for Progress (GAP) project.

Prof. Parttraporn Isarangkura, president of the National Hemophilia Foundation of Thailand (NHFT), relayed the NHSO findings on the Evaluation of the Hemophilia Management Program under Universal Coverage Scheme during 2006-2008 at the World Federation of Hemophilia (WFH) GAP monitoring meeting in Bangkok in June 2009.

The hemophilia outcomes study, spanning May 2006 to December 2008, was carried out by a specialized team of professional researchers.  Key findings include a 23 per cent decrease in hospital admissions for people with hemophilia and a 42 per cent decrease in the number of hospital days per patient. Seventy-eight per cent of patients and their families reported greatly improved quality of life.

“Given the definitive positive outcomes, the NHSO has announced that it will continue the National Hemophilia Care Program and increase the annual hemophilia budget for factor concentrates,” Prof. Isarangkura said. The National Hemophilia Care Program is now also serving as a model for developing sustainable healthcare programs for other high-cost chronic diseases.

Thai Patient Club participants in the Outreach Workshop in the province of Songkhla.

“The government’s renewed commitment is a testament to both the sustainable healthcare model set forward by the WFH’s GAP program and the exceptional work of the NHFT over many years to lay the foundation for the National Hemophilia Care Program that is now coming into being,” said WFH president Mark Skinner.

The WFH’s GAP Thailand project was launched in 2004 to help establish a national hemophilia program under the country’s universal coverage scheme.  The goal of the program is to greatly increase the diagnosis and treatment of people with hemophilia and other bleeding disorders in developing countries.


 

The GAP project focuses on providing affordable factor concentrates for home treatment, emergency care, patient education and outreach, and building the hemophilia professional network. The GAP Thailand project will finish in 2010.

2004

World Federation of Hemophilia (WDH) GAP Thailand project is launched.

2006

Ministry of Health signs a memorandum of understanding on national hemophilia care with the National Health Security Office, Ramathibodi Hospital (Wfh International Hemophilia Training Centre, Bangkok), and the NHFT.

Hemophilia becomes the first high-cost chronic disease to be covered under Thailand’s universal coverage scheme. The government buys factor concentrates.

Development of national online patient registry.

2008

The carrier prevention program is developed under the National Health Security Office.

2009

The expanding care network now has 39 hemophilia treatment centres spread throughout most regions.

Thailand now has 1030 registered patients with hemophilia in the National Health Security Office and social security systems.

Hemophilia World, December 2009