WFH NETWORK

France

Country: France
City: Paris

IHTC:
Paris Haemophilia Centre (Necker (N) and  Kremlin Bicetre (KB) Hospitals)

The Paris International Hemophilia Training Centre is a two-site Hemophilia Treatment Centre (HTC). Each site has a comprehensive care program for patients with hemophilia and bleeding disorders. Paris HTC follows more than one thousand hemophilia patients (severe hemophilia, mild/moderate hemophilia, inhibitors) and patients with other congenital bleeding disorders (hemorrhagic disease from coagulation or platelet disorder). The fellows from the World Federation of Hemophilia are trained in any of/or all of these sites, depending on their requests for specific training.

Necker Hospital 149 rue de Sèvres
Paris, France,  75015
Tel.: 33 14 449 5273
Fax: 33 14 449 5756
Email: hemophilie.necker@nck.aphp.fr

Director: Dr. Chantal Rothschild (N), Dr. Thierry Lambert (KB)
Medical Associates: Dr. R D’Oiron (KB), Dr. A Rafovicz (KB), Dr. A Harroche( N), Dr. Frenzel (N)
Year of IHTC designation: 1972

Areas of specialty: Adult and pediatric hematology; Laboratory diagnosis and hemostasis; Nursing; Dental care; Orthopedic care and surgery; Psychology and Social services.

DESCRIPTION OF IHTC FACILITIES

Location: HTC Bicetre and HTC Necker are located in the suburbs of Paris. These sites, located in Paris or nearby suburbs, share some services, depending on the specificity of the hospital where they are located. The two centres (Bicetre, Necker - Enfants Malades) work closely together and are reference centres for primary hemophilia care centres and hospitals inside the Paris area (population 15 million).

Climate: Temperate

Language: French, English

DESCRIPTION OF TRAINING PROGRAM (KB)

Clinical activities: Pediatric and adult medical and surgical comprehensive care, including orthopedic, urologic, neurosurgical surgery (adults), dentistry, EENT, general surgery (children and adults), genetic counseling, HCV and HIV care.

Laboratory activities/research: A coagulation laboratory is associated with the HTC. Research is principally oriented towards anti-FVIII inhibitors and clinical trials on coagulation factors.

DESCRIPTION OF TRAINING PROGRAM (N)

Clinical activities: Pediatric medical and surgical comprehensive care, including orthopedic surgery (children), neurosurgery (children) comprehensive care for central venous access devices for babies and children; genetic counseling, obstetrical management and prenatal diagnosis; comprehensive care for adults; HCV and HIV care.

Laboratory activities/research: A coagulation laboratory is associated with the centre. Research is oriented towards clinical trials with new therapies, national follow-up of the incidence of inhibitors and psychosocial aspects of long-term prophylaxis.


Updated July 2014