WFH NETWORK

Other Videos

Living with Hemophilia: An interview with Mark Skinner (2010)

WFH President Mark Skinner shares his personal experience of living with hemophilia and shows how he treats the disorder with an infusion of clotting factor concentrate.


Health Economics and Outcome Assessments: Sustaining Hemophilia Care in a Tightening Economy (2010)

WFH President Mark Skinner shares his personal experience of living with hemophilia and shows how he treats the disorder with an infusion of clotting factor concentrate.

This WFH video podcast features a conversation about Health Technology Assessment (HTA) and Comparative Effectiveness Research (CER). Hosting the discussion is Brian O’Mahony, past president of the WFH. He is joined by Dr. Michael Lauer of the National Heart, Blood and Lung Institute (USA), and health economist Adam Hutchings (UK).

Over the past 20 years, many developed countries have been able to provide an ample supply of factor concentrates for hemophilia treatment, with prophylaxis available for children and many adults. However, with the global economic recession, this environment is changing. HTA and CER measures are gaining in use as governments evaluate healthcare policies and make decisions about healthcare spending, presenting both challenges and opportunities to patient organizations and clinicians.


WFH statement on the film Bad Blood: A Cautionary Tale

This film serves as an important reminder of what can happen if we take for granted the care we receive or the medications on which we rely, if we fail to be vigilant and participate when decisions are being made about our treatment and care. Click here to view >


Updated November 2013