The strength of the WFH and of its national member organizations lies in the commitment of inspiring leaders who work every day towards advancing the common vision of Treatment for All. However, many patient organizations are struggling to engage young adults within their communities and there is a need to inspire more active participation. 

Young Voices is a series of articles (see below) designed to help identify, mobilize, and empower future leaders to participate in the global conversation and effect positive change in their communities.

NEW! All 14 articles are now available in one pdf! Download the whole collection and start a conversation with young people in your community.

Youth group success stories

In December, 2013, the WFH Advocacy in Action program held its ninth workshop in Montreal, Canada. Entitled “Developing youth leaders to advocate effectively,” the workshop brought together 12 youth delegates from 12 countries, with a further 29 delegates participating via the online live broadcast. The workshop empowered youth with knowledge, abilities and skills to design, plan and carry out advocacy campaigns/strategies and to lead effectively. Click the thumbnails below to view videos in which two of the delegates, Jenna Lovell from Australia and Premroop Alva from India, present the inspiring successes of their youth groups.

Developing youth leaders to advocate effectively - Jenna Lovell, Australia   Developing youth leaders to advocate effectively - Premroop Alva, India


January 2016 / Volume 4, No. 1

Welcoming change: evolving together
With a clear vision and shared values, your youth group is highly motivated to work together towards your short and long-term goals. But life is ever changing, and you may find that your team’s initial goals are not as relevant today, or as inspiring, as they once were. It is important to recognize when it is time to re-evaluate and embrace change.

December 2015 / Volume 3, No.7

Event planning part two: execution and assessment
The participants have arrived and the big day is here. Making sure your event runs smoothly depends mostly on the extensive planning and preparation detailed in the preceding article, but there is much you can do to minimize mishaps and maximize success on the day.

November 2015 / Volume 3, No. 6

Event planning part one: Pre-event, setting the stage
Organizing an event is a great way for a youth group to work collaboratively towards a concrete and meaningful goal. It has many benefits, such as discovering more about programs and events in the bleeding disorders community, building networks, finding new members and volunteers, and gaining new life experiences.

September 2015 / Volume 3, No. 5

Public relations and fundraising: Furthering your cause
It’s good to let people know about your youth group, especially when you have an upcoming event or recent projects you want to showcase. Public relations, or PR, is the management of your public image – more specifically, how it is defined, maintained, and displayed to the public. This often involves reporting by various media as well as your own public presence.

July 2015 / Volume 3, No. 4

Democracy: We’re in this together

Democracy comes from the Greek words “demos”, meaning the people, and “kratia”, meaning power, or rule. The idea of everyone having a say in what happens in their towns, cities, and villages can also be applied to organizations. A democratic organization is based on freedom rather than control or fear. A democratic organization values and increases human potential.

June 2015 / Volume 3, No. 3

Effective communication: forging deep connections

Good written and spoken communication is instrumental in strengthening our relationships with others, both personally and professionally. Effective, collaborative communication is essential to the success of any team, including your youth group.

April 2015 / Volume 3, No. 2

Member retention: keeping your youth engaged

A youth group cannot exist without its members: you need to know how to keep people interested so they stay involved – member participation is what keeps the group alive. Without enough members, the quality of a youth group’s activities and programs is diminished, the benefits of being part of the group are reduced, and it is harder for the group to achieve their mission.

February 2015 / Volume 3, No. 1

Effective planning: Mapping your path to success

Whether you have a problem to solve or a goal to reach, planning is the first step to action. Planning involves setting objectives, sorting out priorities, preparing timelines, and outlining strategies to accomplish them. Without a proper plan in place, it can be difficult to stay focused on your objectives and achieve goals within the desired timeframe.

December 2014 / Volume 2, No. 5

Time management: Scheduling your priorities

The best way to make the most of your time is to manage it wisely. An important first step in time management is understanding your priorities, or knowing that some things need to be dealt with sooner than others. Making a list of your priorities is helpful in highlighting what you should focus on first.

October 2014 / Volume 2, No. 4

Networking: expanding your youth group’s personal resources

A buzzword commonly used in job hunting, marketing, and social media, networking is crucial for the success of youth groups and non-profits. Networking is an information and service exchange between individuals and groups, and offers a fun and efficient way to share knowledge and inform people about your group’s activities.

August 2014 / Volume 2, No. 3

Team work: the key to your group’s success

A team is more than a collection of people who happen to be in the same youth group, school, or workplace. It is a group of individuals who are committed to each other and to working towards a common goal.

April 2014 / Volume 2, No. 2

Youth groups: Who does what?

So you’ve started a youth group and have recruited some members. Congratulations! Now you need to make sure that your group will achieve its goals. You need structure! Establishing roles and responsibilities and clearly communicating who does what will help keep members engaged and go a long way towards ensuring your activities are successful.

February 2014 / Volume 2, No. 1

Fun, friendly, life-changing: youth groups

A youth group is much more than a collection of young people who meet on a regular basis. In addition to helping young people gain self-confidence, improve interpersonal and communication skills, and develop a strong support network, a youth group is a place where you can celebrate being part of the bleeding disorders community. You can share the challenges and joys of living with a rare condition, find new friends, get advice, participate in fun and educational activities, and take steps to make a change in your community.

November 2013 / Volume 1, No. 1

Leadership in the bleeding disorders community

Steve Jobs, Indira Gandhi, an inspirational member of your hemophilia organization… Most people can name a great leader, but what qualities do they share and how can you go about becoming one? Leadership is a process of social interaction and influence, which motivates and maximizes the efforts of others towards a common goal.

Updated July 2016