Cet événement virtuel de deux jours a proposé des sessions éducatives, une session plénière, un événement phare et des discussions avec les principales parties prenantes* — l’ensemble étant axé sur des sujets relatifs à l’amélioration des soins et de l’accès aux traitements.

Veuillez placer votre curseur sur les sessions figurant dans la grille et cliquer sur « En savoir plus » pour accéder à la présentation des sessions.

Jour 1 | 8 septembre:   SOUTENIR ET AMÉLIORER L'OFFRE DE SOINS

8h15 - 9h00

PLÉNIÈRE
Aperçu de l'accès aux traitements et aux soins dans le monde

9h00 - 10h00

SESSION ÉDUCATIVE
Stratégies effectives d'amélioration de l'accès aux traitements & aux soins

10h00 - 10h15

PAUSE
Advocacy case presentations

10h15 - 11h15

SESSION ÉDUCATIVE
Modèles d'offres de soins actuelles et dans un monde post-pandémique

11h15 - 11h45

PAUSE
Advocacy case presentations

11h45 - 13h00

DISCUSSIONS AVEC LES PARTIES PRENANTES
*Uniquement sur invitation

 

Jour 2 | 9 septembre:   ACCÈS AUX TRAITEMENTS ET PASSATION DE MARCHÉ

8h30 - 9h15

SESSION ÉDUCATIVE
Collaborer pour renforcer l'accès aux soins (panel)

9h15 - 10h00

SESSION CLÉ DE LA FMH
Académie de plaidoyer du PACT

10h00 - 10h15

PAUSE
Advocacy case presentations

10h15 - 11h15

SESSION ÉDUCATIVE
Aspects economiques de l'offre de soins et de l'accès aux thérapies

11h15 - 12h15

SESSION ÉDUCATIVE
Modèles de passation de marché

12h15 - 12h45

PLÉNIÈRE
Recommandations et messages clés du sommet

UNIQUEMENT SUR INVITATION
INTERPRÉTATION SIMULTANÉE EN ARABE, ESPAGNOL, SPANISH, FRANÇAIS & RUSSE
TOUS LES HORAIRES SONT INDIQUÉS À L’HEURE DE MONTRÉAL
PROGRAMME SUSCEPTIBLE DE MODIFICATION

 

PLÉNIÈRE

Aperçu de l'accès aux traitements et aux soins dans le monde


How is the pandemic impacting global healthcare systems around the world? What will the “new normal” be? In this opening session, Cesar Garrido (WFH) and Dr. Glenn Pierce (WFH) will address the effects of the pandemic on WFH’s vision of Treatment for All, as well as highlight the current state of access to treatment and care. Keynote speaker Dr. Mariângela Simão (WHO) will also discuss the impact of the Universal Health Coverage priorities and Sustainable Development Goals on access to care for people with inherited bleeding disorders. Join us to find out what role must patient organizations, healthcare professionals and governments play in improving access to care.

Chair
Alain Baumann, CEO, World Federation of Hemophilia, Montreal, Canada

Opening and welcome remarks
Cesar Garrido, President, World Federation of Hemophilia, Caracas, Venezuela

WHO Keynote Address
Mariângela Batista Galvão Simão, Assistant Director - General Access to Medicines and Health Products, World Health Organization, Geneva, Switzerland

Current state of access globally: The new normal
Glenn Pierce, Vice-President Medical, World Federation of Hemophilia, San Diego, United States

SESSION ÉDUCATIVE :

Stratégies effectives d'amélioration de l'accès aux traitements & aux soins


In this session, speakers will address the importance of data analysis to inform policy decisions, building alliances with patient groups and other effective strategies to improve access to treatment and care for people with bleeding disorders. Emphasis will be made on patient organization’s key contributions and expertise in integration of bleeding disorders within national health systems.

Chair
Dawn Rotellini, Chief Operating Officer, National Hemophilia Foundation, United States

Effective strategies to improve access
Bradley Rayner, National Chairperson, South African Haemophilia Foundation, Cape Town, South Africa

Data analysis to inform policy decisions
Declan Noone, President of the European Haemophilia Consortium, Dublin, Ireland

Building alliances to improve access to care and treatment: Strategies towards success
Durhane Wong-Rieger, President and CEO, Canadian Organization for Rare Disorders, Toronto, Canada

SESSION ÉDUCATIVE :

Modèles d'offres de soins actuelles et dans un monde post-pandémique


The pandemic has brought many challenges to the existing models of organization and delivery of care. This session highlights the opportunities that also arise in the post-pandemic era. Presenters will share different case studies from around the world that led to improved access to care for people with bleeding disorders during these difficult times.

Chair
Dan Hart, Chair, WFH HTC Twinning Committee, United Kingdom

Organization and delivery of care
Margareth Ozelo, Professor, Hemocentro Unicamp, University of Campinas, Brazil

New opportunities and challenges - What can care delivery look like in post-pandemic world
Hatoon Mohammed, Director of blood disorders program, MOH, Johns Hopkins Aramco Healthcare, Dhahran, Saudi Arabia

Positive changes: Making temporary gains permanent
Daniel Anibal Garcia, President, Federación Española de Hemofilia – FEDHEMO, Madrid, Spain
- presenting in Spanish

SESSION ÉDUCATIVE :

Collaborer pour renforcer l'accès aux soins (panel)


WFH VP Medical, Dr. Glenn Pierce, will moderate a panel discussion bringing together perspectives from a patient organization leader, a healthcare provider and a national government representative. This discussion will highlight potential areas of collaboration between stakeholders and identify the advantages of capitalizing on each other’s expertise. Speakers will share the lessons learned from their respective experiences in Nigeria, Tunisia, and Morocco.

Moderator
Glenn Pierce, Vice-President Medical, World Federation of Hemophilia, San Diego, United States

Panelists
Megan Adediran, Executive Director, Haemophilia Foundation of Nigeria, Kaduna, Nigeria

Emna Gouider, Hematologist, Aziza Othmana Hospital, Tunis, Tunisia

Latifa Belakhel, Chef de Division des Maladies Non Transmissibles, Direction de l'Epidémiologie et de Lutte contre les Maladies, Ministère de la Santé, Rabat, Morocco

SESSION CLÉ DE LA FMH

Académie de plaidoyer du PACT


This session will present an overview of the WFH’s Path to Access to Care and Treatment (PACT) Program and launch the new PACT Advocacy Academy – an 8-month training course for NMO leaders and advocates developed by the WFH in partnership with the New York University Robert F. Wagner Graduate School of Public Service.

Welcome and Introductions
Donna Coffin, Director - Research & Education, World Federation of Hemophilia, Montreal, Canada

PACT Program and Advocacy Academy
Salome Mekhuzla, Director - Global Development, World Federation of Hemophilia, Montreal, Canada

Importance of the Advocacy Academy for NMOs
Carlos Safadi Marquez, Vice-president - NMO, World Federation of Hemophilia, Buenos Aires, Argentina

Collaboration between WFH & NYU Wagner
John Gershman, Clinical Professor of Public Service; Co-Director of Capstone Program, New York University Robert F. Wagner Graduate School of Public Service, New York

Course content and design
Mathieu Jackson, President, CHS Quebec Chapter, Montreal, Canada

SESSION ÉDUCATIVE :

Aspects economiques de l'offre de soins et de l'accès aux thérapies


This session will present an overview of the current state of access to therapies for people with bleeding disorders. Speakers will also highlight the importance of patient-relevant data on treatment choices and health policy decision-making. Session will include a case study and concrete recommendations will be brought forward for patient organizations to advocate for increased access to therapies.

Chair
Dawn Rotellini, Chief Operating Officer, National Hemophilia Foundation, United States

Access to therapies in different resource-settings / What does the data tell us
Mark Skinner, President/CEO, Institute for Policy Advancement Ltd, Washington DC, United States

Making evidence-based decisions on reimbursement policies
Jamie O'Hara, CEO, HCD Economics, Cheshire, United Kingdom

Advocating for access to a novel therapy: A Canadian case study
David Page, Director of Health Policy, Canadian Hemophilia Society, Quebec City, Canada

SESSION ÉDUCATIVE :

Modèles de passation de marché


This session aims to give an overview of various procurement models for hemophilia and other inherited bleeding disorders therapeutic products, present key principles in setting up an efficient national procurement mechanism and highlight the importance of multi-stakeholder involvement in decision-making. Case studies from Russia, Ireland and Central America will be presented to offer insight on patient organization, government, and regional procurement agency perspectives.

Chair
Mukesh Garodia, President, Hemophilia Federation (India), Guwahati, India

Procurement of therapeutic products for bleeding disorders
Brian O'Mahony, CEO, Irish Haemophilia Society, Dublin, Ireland

Patient organization perspective: Russia's experience in improving access to therapies
Yuri Zhulyov, President, Russian Hemophilia Society, Moscow, Russia

Regional procurement agency perspective
Margarita Elizabeth García Gonzalez, Technical Assistant - Medicines and Other Health Technologies Unit, Executive Secretariat of the Council of Ministers of Health of Central America and Dominican Republic (SE-COMISCA), El Salvador
- presenting in Spanish

Government perspective: Efficient procurement mechanisms
Brian Fitzgerald, Deputy CEO, Beacon Hospital, Dublin, Ireland

DISCUSSIONS AVEC LES PARTIES PRENANTES


*Uniquement sur invitation

PLÉNIÈRE

Recommandations et messages clés du sommet


How is the global bleeding disorders community sustaining and advancing care today and in the post-pandemic world? Which strategies have proven successful? What contributions do various stakeholders bring in achieving a more equitable access to treatment and care for people with bleeding disorders globally? Join us as we closes the Global Policy and Access Summit by presenting key recommendations and takeaways from this 2-day meeting, as well as an overview of the main takeaways from the stakeholder discussions.

Chair
Salome Mekhuzla, Director - Global Development, World Federation of Hemophilia, Montreal, Canada

Presenters
David Page, Director of Health Policy, Canadian Hemophilia Society, Quebec City, Canada

Mukesh Garodia, President, Hemophilia Federation, Guwahati, India

Antonio Gomez Cavallini, General Coordinator, Coalition of the Americas of Hemophilia, Buenos Aires, Argentina

Réseau de la FMH

FMH
La FMH joue un rôle de premier plan dans le financement et l'amélioration des soins aux personnes souffrant de troubles héréditaires de la coagulation.
FMH USA
La FMH USA fait progresser la cause de la FMH aux États-Unis.
Plateforme d’apprentissage en ligne
Un accès facile à toutes les ressources de la FMH sur les troubles de la coagulation.
Le monde de l’hémophilie
Découvrez les actualités de la FMH et de la prise en charge des troubles de la coagulation dans le monde.

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  • Sommet mondial sur les politiques et l'accès aux soins
    1425, boul. René-Lévesque Ouest, Bureau 1200 
    Montréal, Québec H3G 1T7 Canada
    Tel.: +1 (514) 875-7944
    Fax: +1 (514) 875-8916
    Courriel: [email protected]

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