WFH WBDR Research Support Program

The World Bleeding Disorders Registry (WBDR) Research Support Program is designed to motivate and support hemophilia treatment centres (HTC) to collect, analyze and use their WBDR data.

The goal is to encourage countries with limited data collection experience to participate in the WBDR and use their data for research or advocacy.

APPLICATION CYCLE AND DEADLINES
Submission of research proposals start September 1, 2020
Submission of research proposals deadline November 1, 2020
Review and selection of research projects November - December 2020
Announcement of recipients Mid-December 2020
Funds disbursed January 2021

The WFH WBDR Research Support Program will fund up to 15 projects per year.

  • Funding of $2,000 - $5,000 USD per project
  • Project duration can be one or two years

Eligibility
The program is open to recognized HTCs* from any country, as long as they are registered in the WBDR**.

Only research proposals that use WBDR will be eligible.

*The applicant must be the HTC Director or the primary contact person for the WBDR. Only one application per HTC is accepted, per cycle.
**HTC that has completed a WBDR registration form and is either applying for WBDR approval from their institutional review board or ethics committee or has received ethical approval.

All HTCs are welcome to submit a research proposal. Priority may be given to HTCs with limited data collection experience in their country and/or HTCs in low and middle-income countries.

Selection criteria
WFH WBDR research support will be awarded to projects that best align with the following criteria:

  • Novelty of the research objectives
  • Importance of the research to influence policy or build evidence-based advocacy
  • Demonstration of the value of data collection
  • Needs of the country
  • Existence of limited data collection activities
  • Sustainability plan
  • Feasibility of completing the research within the proposed timeframe and budget

Collaboration is recommended and HTCs within a country are encouraged to apply as a group. The WFH Medical Advisory Board and the WFH WBDR Steering Committee have identified the following eligible collaboration opportunities:

  • Country-level collaboration between all HTCs in a country
  • International research partnerships and comparative analysis between HTCs

Please note that this list is intended to provide guidance on the type of collaboration that might be possible. Collaboration is not a submission requirement.

Application forms are available in English, French, Spanish, and Russian.

  • Applicants are responsible for determining if their research project requires ethics approval and follows the appropriate guidelines from their national/institutional Research Ethics Board. Please note that HTCs participating in the WBDR must first obtain ethics approval from their local institution or ministry of health in order to enter patient data into the WBDR database. With the exception of fees required by your research ethics board, funds will not be released before ethical approval to participate in the WBDR has been obtained.
  • Applicants are responsible for ensuring that they can receive funds from the WFH according to the laws and regulations of their HTCs and country. HTCs that are not able to receive funds through the usual means will not be considered for funding.
  • The funds must contribute towards the direct costs of the research program or project for which the funds were awarded. This can include any part of the WBDR approval process or data management process: obtaining ethics approval, collecting data, entering the data in the WBDR, cleaning the data, analyzing the data or writing up the report. Other eligible costs can include staff, materials, internet access, and supplies. Costs that are not eligible include investigator or clinical staff salaries, travel expenses, or clinic reimbursements. Note that any overhead costs should be included in your project budget.
  • The WBDR Research Support Committee reserves the right to modify the budget and award an amount that is deemed acceptable.
  • The HTC must commit to inviting all their patients with hemophilia in the WBDR (as is the case for any HTC participating in the WBDR) and must ensure that their data is clean and of high quality. Data quality is assessed by the WFH on an ongoing basis.
  • Two-year funding will be disbursed in two annual payments and will be sent to the financial officer of the host institution.
  • Applications that receive funds must acknowledge the support of the WFH WBDR Research Support Program in all publications and oral presentations relating to the funded research.
  • To ensure continued funding for the second year, a short progress report is required. A final report is required upon completion of the research project. Financial reporting must be included in the progress and final reports.

Research proposal submissions will be accepted from September 1 till November 1, 2020. All submissions are peer-reviewed by the WBDR Research Support Committee and successful applicants will be notified by the mid of December 2020. Completed research proposals must be sent by email to .

Please read the criteria and conditions before submitting a research proposal. Data analysis does not need to be high level statistical analysis, it could be simple summary statistics of the HTC data.

Examples of potential research questions are the following:

  • What is the change in bleeding events before and after starting low-dose prophylaxis?
  • What is the prevalence of intra-cranial bleeding among hemophilia patients at my HTC? Is it consistent with what is reported in the literature?
  • What is the average age of the first bleeding event among the hemophilia patients at my HTC?

Download the WFH WBDR Research Proposal – Application Form (Word document):
English
French
Spanish
Russian

For more information, contact .


Charitable solicitations for the common purpose of WFH and WFH USA within the U.S. are conducted through WFH USA, a 501(c)3 affiliated entity.